Measuring the parental, service and cost impacts of children with autistic spectrum disorder:: A pilot study

Measuring the parental, service and cost impacts of children with autistic spectrum disorder:: A pilot study
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DOI:
10.1023/a:1025058711465
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发表时间:
2003-08-01
影响因子:
3.9
通讯作者:
Knapp, M
Knapp, M
中科院分区:
心理学3区
文献类型:
--
作者:
Järbrink, K;Fombonne, E;Knapp, M

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本研究的目的是进行一个初步的研究工具,专门收集成本信息的个人自闭症谱系障碍。关于患有自闭症或自闭症相关障碍的儿童或成人的成本信息很少,似乎没有研究在这方面进行了具体的成本收集。虽然可以作出一些全球成本估计,但对父母负担的成本影响知之甚少。通过使用不同的技术来收集间接成本,该研究概述了一种功能方法。这项小型试点研究的结果表明,父母的经济负担相当大,并给出了自闭症谱系障碍相关成本的一些指标。
The aim of this study was to carry out a preliminary examination of a research instrument developed specifically to collect cost information for individuals with autistic spectrum disorder. There is very little cost information on children or adults with autism or autism-related disorder, and no study appears to have carried out a specific cost collection in this area. Although some global cost estimates can be made, little is known about the cost implications of parental burden. By using different techniques to collect indirect costs, the study outlines a functional methodology. Results from this small pilot study point to considerable economic burden for parents and give some indication of the associated costs of autistic spectrum disorder.