A Survey of Information Needs and Preferences of Patients With Head and Neck Cancer
A Survey of Information Needs and Preferences of Patients With Head and Neck Cancer
复制标题
DOI：
10.1188/18.onf.761-774
复制
发表时间：
2018-11-01
影响因子：
1.9
通讯作者：
Olson, Karin
中科院分区：
文献类型：
--
作者：
Saroa, Oksana;Molzahn, Anita E.;Olson, Karin
目的：了解18~65岁头颈部癌患者在治疗后恢复期的信息需求和偏好。资料与背景：205例在加拿大西部两个大型癌症中心完成治疗的头颈部癌患者。方法与变量：以纸质或在线形式完成自填式调查。与会者被问及被认为最重要的信息，即恢复过程中使用的信息来源。结果：参与者想要关于复发的迹象和症状、治愈率、治疗后康复、治疗和恢复时间框架的信息。和经济援助。他们认为医疗保健提供者是最常用和最有帮助的信息来源，但也报告了互联网是有用的，在线信息资源在康复期间将有所帮助。护理应用：护士可以通过帮助开发可靠的基于互联网的资源来为HNC幸存者提供更个性化的信息。这些资源的开发者还可以考虑创建直接联系医疗保健提供者和因诊断和治疗而遇到问题的HNC幸存者的方法。
OBJECTIVES: To determine the information needs and preferences of patients who had human papillomavirus-associated head and neck cancer (HNC) and who were aged 18-65 years in the post-treatment phase of recovery.SAMPLE& SETTING: 205 patients who completed treatment for HNC at two large cancer centers in Western Canada.METHODS & VARIABLES: A self-administered survey was completed in paper or online format. Participants were asked about information considered most important, sources of information used during recovery. and sources considered most helpful.RESULTS: Participants wanted information on signs and symptoms of recurrence, cure rates, post-treatment rehabilitation, treatment and recovery time frames. and financial assistance. They identified healthcare providers as the most frequently used and helpful source of information, but also reported that the Internet was useful and that an online information resource would be helpful during recovery.IMPLICATIONS FOR NURSING: Nurses can provide more personalized information for survivors of HNC by contributing to the development of reliable Internet-based resources. The developers of these resources could also consider creating ways to directly link healthcare providers and survivors of HNC who are experiencing problems stemming from diagnosis and treatment.