I just can't please them all and stay sane: Adult child caregivers' experiences of family dynamics in care-giving for a parent with dementia in Australia
I just can't please them all and stay sane: Adult child caregivers' experiences of family dynamics in care-giving for a parent with dementia in Australia
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DOI：
10.1111/hsc.12534
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发表时间：
2018-05-01
影响因子：
2.4
通讯作者：
Konis, Anastasia
中科院分区：
文献类型：
--
作者：
Tatangelo, Gemma;McCabe, Marita;Konis, Anastasia
生活在社区内的痴呆症患者的家庭照顾者由于他们的照顾角色而经常经历压力和生活质量差。虽然有许多因素影响这一点，其中一个有影响力的因素是家庭环境。本研究以成年儿童照顾者为研究对象。它研究了在照顾患有痴呆症的父母的背景下，家庭动力学对成年儿童照顾者的痛苦的具体方式。半结构化的采访进行了17名参与者是成年子女的主要照顾者的父母患有痴呆症谁是生活在社区内。访谈录了音，并作了逐字记录。使用专题分析法对成绩单进行了分析。确定了四个主题，这些主题代表了照顾者特别关注和困扰的领域：家庭期望和照顾者在承担照顾角色方面缺乏选择;家庭成员对痴呆症的否认和不同理解;家庭成员对照顾的不同信念和方法;家庭成员之间的沟通障碍。研究结果表明了进一步研究的几种途径，包括制定干预措施，以支持成年儿童照顾者，并在照顾痴呆症父母的背景下解决有问题的家庭动态。
Family caregivers of people with dementia who live within the community often experience stress and poor quality of life due to their care-giving role. While there are many factors that affect this, one influential factor is the family context. This study focussed on adult child caregivers. It examined the specific ways that family dynamics contribute to adult child caregivers' distress in the context of caring for a parent with dementia. Semi-structured interviews were conducted with 17 participants who were adult child primary caregivers for a parent with dementia who was living within the community. Interviews were audiotaped and transcribed verbatim. Transcripts were analysed using thematic analysis. Four themes were identified that represented areas of particular concern and distress for the caregivers: family expectations and caregivers' lack of choice in adopting the care-giving role; denial and differential understandings of dementia among family members; differential beliefs and approaches to care-giving among family members; and communication breakdown between family members. The findings demonstrate several avenues for further research including the development of interventions to support adult child caregivers and address problematic family dynamics within the context of caring for a parent with dementia.