Pediatric Concurrent Hospice Care: A Scoping Review and Directions for Future Nursing Research.

Pediatric Concurrent Hospice Care: A Scoping Review and Directions for Future Nursing Research.
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DOI:
10.1097/njh.0000000000000648
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发表时间:
2020-06
期刊:
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association
影响因子:
--
通讯作者:
Hinds PS
Hinds PS
中科院分区:
其他
文献类型:
--
作者:
Lindley LC;Keim-Malpass J;Svynarenko R;Cozad MJ;Mack JW;Hinds PS

文献摘要

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2010年,通过《患者保护和负担得起的医疗法案》第2302条(称为儿童并发护理),放弃治疗性治疗被取消为儿童临终关怀的资格标准。鉴于同时护理是联邦政府授权的儿童及其家庭的选择,没有进行科学审查。本研究的目的是系统地收集有关同期临终关怀的证据,批判性地评价证据,并确定未来护理研究的领域。在识别的186篇文献中,14篇符合纳入和排除标准。本综述中的研究从政策、法律的和伦理学等多个角度描述了并发临终关怀。然而,只有一篇文章评价了并发临终关怀对结果的影响,而几项研究解释了临床和国家一级的实施。有必要进一步开展研究,超越概念化,并产生基线和成果数据。了解同时性安宁疗护的成效,可为未来护理研究提供重要资讯。应探讨在州、提供者和家庭层面传播和实施并行临终关怀的方法。
In 2010, forgoing curative therapies was removed as a hospice eligibility criteria for children through section 2302 of the Patient Protection and Affordable Care Act called Concurrent Care for Children. Given that concurrent care is a federally-mandated option for children and their families, no review of the science has been conducted. The purpose of this study was to systematically collect the evidence on concurrent hospice care, critically appraise the evidence, and identify areas for future nursing research. Of the 186 articles identified for review, 14 met inclusion and exclusion criteria. Studies in this review described concurrent hospice care from a variety of perspectives: policy, legal, and ethics. However, only one article evaluated impact of concurrent hospice care on outcomes, while several studies explained clinical and state-level implementation. There is a need for further studies that move beyond conceptualization and generate baseline and outcomes data. Understanding the effectiveness of concurrent hospice care might provide important information for future nursing research. The approaches used to disseminate and implement concurrent hospice care at state-, provider-, and family-levels should be explored.