The Impact of a Global Pandemic on People Living with Dementia and Their Care Partners: Analysis of 417 Lived Experience Reports.
The Impact of a Global Pandemic on People Living with Dementia and Their Care Partners: Analysis of 417 Lived Experience Reports.
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DOI：
10.3233/jad-201114
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发表时间：
2021
期刊：
影响因子：
--
通讯作者：
Robillard JM
中科院分区：
文献类型：
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作者：
Tam MT;Dosso JA;Robillard JM
2019冠状病毒病大流行正在影响老年痴呆症患者及其护理伙伴的身心健康。作为加拿大不列颠哥伦比亚省正在进行的痴呆症支持服务评估的一部分，我们采用以患者为中心的方法，探讨了2019冠状病毒病大流行期间痴呆症患者及其护理伙伴的经历和需求。围绕加拿大阿尔茨海默病协会召集的2019冠状病毒病和痴呆症特别工作组确定的优先事项制定了一项调查工具。共分析了417份调查。总体而言，受访者能够获得有助于保持自身健康和管理一段时间的社交距离的信息。护理合作伙伴报告了一些严重的问题，包括无法探望他们在长期或姑息治疗中所照顾的人。参与者还报告说，大流行总体上增加了他们的压力水平，他们感到比大流行前更孤独、更孤立。据报道，科技的使用是与他们所爱的人进行社交联系的一种方式，大多数参与者每周至少与他人联系两次。通过痴呆症患者及其护理伙伴的经历来审视全球大流行的复杂影响，对于了解恢复其生活质量和健康以及更好地为未来做好准备的卫生保健优先事项至关重要。
The COVID-19 pandemic is impacting the physical and emotional health of older adults living with dementia and their care partners. Using a patient-centered approach, we explored the experiences and needs of people living with dementia and their care partners during the COVID-19 pandemic as part of an ongoing evaluation of dementia support services in British Columbia, Canada. A survey instrument was developed around the priorities identified in the context of the COVID-19 and Dementia Task Force convened by the Alzheimer Society of Canada. A total of 417 surveys were analyzed. Overall, respondents were able to access information that was helpful for maintaining their own health and managing a period of social distancing. Care partners reported a number of serious concerns, including the inability to visit the person that they care for in long-term or palliative care. Participants also reported that the pandemic increased their levels of stress overall and that they felt lonelier and more isolated than they did before the pandemic. The use of technology was reported as a way to connect socially with their loved ones, with the majority of participants connecting with others at least twice per week. Looking at the complex effects of a global pandemic through the experiences of people living with dementia and their care partners is vital to inform healthcare priorities to restore their quality of life and health and better prepare for the future.