Caregiver burden in epilepsy: determinants and impact.
Caregiver burden in epilepsy: determinants and impact.
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DOI：
10.1155/2014/808421
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发表时间：
2014
期刊：
影响因子：
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通讯作者：
Piperidou C
中科院分区：
文献类型：
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作者：
Karakis I;Cole AJ;Montouris GD;San Luciano M;Meador KJ;Piperidou C
目的。癫痫患者的照顾者负担 (CB) 是一个尚未得到充分研究的领域。在这里，我们试图确定这种负担的严重程度、与之相关的因素及其对护理人员生活质量 (QOL) 的影响。方法。 48 名癫痫患者 (PWE) 接受了视频脑电图监测，他们的护理人员完成了问卷调查，提供人口统计、疾病相关、精神、认知、睡眠、生活质量和负担信息。 结果。回归分析显示，较高数量的抗癫痫药物、较差的患者神经心理学表现、较低的患者生活质量评分和较低的护理人员教育水平与较高的 CB 相关。分配给患者护理的时间是近似值，但未达到统计显着性。 CB 与看护者 QOL 身体成分总分之间存在中度负相关，而 CB 与看护者 QOL 心理成分总分之间存在较强的负相关。结论。在接受视频脑电图监测的选定 PWE 队列中，我们发现了中等程度的 CB，与文献中报道的其他慢性神经系统疾病相当。它与特定的患者和护理人员特征相关，并对护理人员的生活质量产生负面影响。
Aim. Caregiver burden (CB) in epilepsy constitutes an understudied area. Here we attempt to identify the magnitude of this burden, the factors associated with it, and its impact to caregiver quality of life (QOL). Methods. 48 persons with epilepsy (PWE) underwent video-EEG monitoring and their caregivers completed questionnaires providing demographic, disease-related, psychiatric, cognitive, sleep, QOL, and burden information. Results. On regression analysis, higher number of antiepileptic drugs, poorer patient neuropsychological performance, lower patient QOL score, and lower caregiver education level were associated with higher CB. Time allocated to patient care approximated but did not attain statistical significance. A moderate inverse correlation between CB and caregiver QOL physical component summary score and a stronger inverse correlation between CB and caregiver QOL mental component summary score were seen. Conclusion. In a selected cohort of PWE undergoing video-EEG monitoring, we identified modest degree of CB, comparable to that reported in the literature for other chronic neurological conditions. It is associated with specific patient and caregiver characteristics and has a negative effect on caregiver QOL.