Ethics and informatics in the age of COVID-19: challenges and recommendations for public health organization and public policy
Ethics and informatics in the age of COVID-19: challenges and recommendations for public health organization and public policy
复制标题
DOI：
10.1093/jamia/ocaa188
复制
发表时间：
2021-01-01
影响因子：
6.4
通讯作者：
Senathirajah, Yalini
中科院分区：
文献类型：
--
作者：
Subbian, Vignesh;Solomonides, Anthony;Senathirajah, Yalini
美国的COVID-19大流行应对暴露了信息系统和流程的重大缺陷，阻碍了及时的临床和公共卫生决策。具体而言，使用信息学来缓解SARS-CoV-2的传播，支持COVID-19的护理提供，并加速知识发现，将隐私，监视，国家权力限制以及公共卫生和临床信息系统之间的互操作性问题带到了最前沿。通过建立共识的过程，我们批判性地分析了与信息相关的伦理问题，这些问题涉及三个主题：（1）公共卫生报告和数据共享，（2）接触者追踪和跟踪，以及（3）重症监护的临床评分工具。我们提供了在大流行期间可采取行动的伦理考虑和建议的背景和理由，并提出了呼吁公共卫生组织和政策改革进行更长期、更广泛变革（超越大流行）的建议。
The COVID-19 pandemic response in the United States has exposed significant gaps in information systems and processes that prevent timely clinical and public health decision-making. Specifically, the use of informatics to mitigate the spread of SARS-CoV-2, support COVID-19 care delivery, and accelerate knowledge discovery bring to the forefront issues of privacy, surveillance, limits of state powers, and interoperability between public health and clinical information systems. Using a consensus-building process, we critically analyze informatics-related ethical issues in light of the pandemic across 3 themes: (1) public health reporting and data sharing, (2) contact tracing and tracking, and (3) clinical scoring tools for critical care. We provide context and rationale for ethical considerations and recommendations that are actionable during the pandemic and conclude with recommendations calling for longer-term, broader change (beyond the pandemic) for public health organization and policy reform.