Palliative Needs of Spousal Caregivers of Patients with Heart Failure Followed at Specialized Heart Failure Centers.
Palliative Needs of Spousal Caregivers of Patients with Heart Failure Followed at Specialized Heart Failure Centers.
复制标题
在专门的心力衰竭中心跟踪心力衰竭患者的配偶照顾者的姑息治疗需求。
DOI：
10.1097/njh.0b013e31820ce15e
复制
发表时间：
2011
期刊：
影响因子：
--
通讯作者：
Fogg,Janet
中科院分区：
文献类型：
--
作者：
Hupcey,JudithE;Fenstermacher,Kimberly;Kitko,Lisa;Fogg,Janet
随着心力衰竭发病率的增加，越来越多的患者及其护理人员面临着与疾病不可预测性质相关的需求。姑息治疗干预措施是满足这些需求的适当方式；然而，姑息治疗仍未得到充分利用。家庭照顾者，特别是配偶，在为这些患者提供护理方面发挥着重要作用；因此，在规划干预措施时考虑他们的需求是很重要的。本文的目的是描述在心力衰竭的动态涨落背景下，在专业心力衰竭中心随访的患者配偶照顾者的需求。45对配偶（n= 45）在12至18个月的时间里接受了采访，以跟踪他们不断变化的需求。采用扎根理论方法收集和分析数据。确定了四类适合姑息治疗干预的总体需求：信息、经济、社会心理和身体。这些需求一直存在，但在医疗稳定与恶化/医疗不稳定期间发生了变化。护理人员不断重新确定他们的需求优先级，以应对心力衰竭的经历；因此，在病情恶化期间间歇性提供姑息治疗是不够的。护士可以在促进全面姑息治疗干预措施中发挥关键作用，以改善那些照顾和生活在心力衰竭中的人的体验。
As the incidence of heart failure increases, more patients and their caregivers are faced with needs related to the unpredictable nature of the illness. Palliative care interventions are an appropriate way to meet these needs; however, palliative care remains underutilized. Family caregivers, particularly spouses, play an important role providing care to these patients; thus, it is important to consider their needs when planning interventions. The purpose of this article was to describe the needs of spousal caregivers of patients followed up at specialized heart failure centers within the context of the dynamic ebb and flow of heart failure. Forty-five spouses (n= 45) were interviewed over 12 to 18 months to follow their changing needs. Grounded theory methods were used to collect and analyze data. Four categories of overarching needs amenable to palliative care interventions were identified: informational, financial, psychosocial, and physical. These needs were always present but changed during times of medical stability versus exacerbation/medical instability. Caregivers continually reprioritized their needs in response to the heart failure experience; therefore, episodic offerings of palliative care during exacerbations are inadequate. Nurses can play a pivotal role in facilitating comprehensive palliative care interventions to improve the experience of those caring for and living with heart failure.