Care Provider Perspectives on End-of-life Care in Long-Term-Care Homes: Implications for whole-person and palliative care

Care Provider Perspectives on End-of-life Care in Long-Term-Care Homes: Implications for whole-person and palliative care
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DOI:
10.1177/082585971002600208
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发表时间:
2010-06-01
影响因子:
1.7
通讯作者:
MacLean, Michael
MacLean, Michael
中科院分区:
医学4区
文献类型:
--
作者:
Sims-Gould, Joanie;Wiersma, Elaine;MacLean, Michael

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本研究从照护者的角度,全面探讨失智症老人在长期照护中临终关怀的经验。七名研究人员使用集中的人种学方法,在五天的时间里采访了LTC的工作人员、居民家庭、志愿者、管理人员和精神顾问/神职人员。研究由两个关键问题指导:从不同护理提供者的角度来看,生活在LTC的人的临终体验是什么?以及,为在长期护理中死亡的老人提供姑息护理的突出问题是什么?根据逐字数据的主题分析,确定了三个共同的主题:按时完成工作任务与居民“在那里”之间的紧张关系;前线工作人员与居民之间家庭般的纽带的重要性;以及工作人员之间以及工作人员与居民及其家人在生命结束时沟通的重要性。研究结果进行了讨论,他们的政策和做法,可以支持全人护理,并最终为LTC设施的居民好死的影响。
This study holistically explores the experience of dying and end-of-life care for older persons with dementia in long-term care (LTC) from the perspective of care providers. Using a focused ethnography methodology, seven researchers interviewed LTC staff, residents' families, volunteers, management staff, and spiritual advisers/clergy over a five-day period. Research was guided by two key questions: What is the dying experience of people living in LTC from the perspective of different care providers? and, What are the salient issues in providing palliative care for elderly people dying in LTC? Based on a thematic analysis of verbatim data, three common themes were identified: tension between completing job tasks on time and "being there" for residents; the importance of family-like bonds between front-line staff and residents; and the importance of communication among staff and between staff and residents and their families at the end of life. Findings are discussed in relation to their implications for policies and practices that can support whole-person care and ultimately a good death for residents of LTC facilities.