Information sharing in differences of sex development: The creation of a caregiver-support tool.
Information sharing in differences of sex development: The creation of a caregiver-support tool.
复制标题
性别发育差异的信息共享：创建护理人员支持工具。
DOI：
10.1037/fsh0000724
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发表时间：
2023
期刊：
影响因子：
--
通讯作者：
DSD-TRNPsychosocialWorkgroup
中科院分区：
文献类型：
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作者：
Moyer,DanielleN;Suorsa-Johnson,KristinaI;Weidler,EricaM;Ernst,MichelleM;DSD-TRNPsychosocialWorkgroup
前言社会支持是性别发育差异儿童（DSD）父母和照料者心理健康负向影响的保护性因素。然而，由于照顾者不愿与他人分享有关其儿童诊断的信息，因此很难进入已建立的社会支持网络。DSD领域的卫生保健提供者，特别是行为健康提供者，有能力帮助护理人员与他们生活中的重要人物分享信息，以获得所需的社会支持。本文总结了一个临床工具的发展，以帮助临床医生促进讨论与照顾者的儿童与DSD.MethodMembers的DSD-转化研究网络的社会心理学研究员的信息共享完成了一项调查，他们的经验，促进信息共享讨论与照顾者的儿童与DSD和其他健康人群。这项调查的结果被用来开发一个临床工具，使用不断迭代的反馈，从ESTA成员，以用户为中心的设计和质量improvement.ResultsWorkgroup成员的原则的基础上，考虑信息共享的一个重要方面与照顾者的儿童与DSD。额外的资源和工具被确定为潜在的帮助这些discussion.DiscussionThe DSD共享健康信息强大的团队版本（SHIP-T）是一个资源工具，为DSD医疗保健团队成员利用在医院和门诊设置，以帮助照顾者的儿童与DSD共享信息与他们的社会支持网络。最终的SHIP-T包含在本文中。
IntroductionSocial support can be a protective factor against the negative mental health outcomes experienced by some parents and caregivers of children with differences of sex development (DSD). However, established social support networks can be difficult to access due to caregiver hesitancy to share information with others about their child’s diagnosis. Health care providers in the field of DSD, and particularly behavioral health providers, are well positioned to help caregivers share information with the important people in their lives in order to access needed social support. This article summarizes the development of a clinical tool to help clinicians facilitate discussions regarding information sharing with caregivers of children with DSD.MethodMembers of the psychosocial workgroup for the DSD-Translational Research Network completed a survey about their experiences facilitating information sharing discussions with caregivers of children with DSD and other health populations. The results of this survey were used to develop a clinical tool using ongoing iterative feedback from workgroup members, based on principles of user-centered design and quality improvement.ResultsWorkgroup members consider information sharing an important aspect of working with caregivers of children with DSD. Additional resources and tools were identified as potentially helpful to these discussions.DiscussionThe DSD Sharing Health Information Powerfully—Team Version (SHIP-T) is a resource tool for DSD health care team members to utilize in hospital and ambulatory settings to help caregivers of children with DSD share information with their social support networks. The final SHIP-T is included in this article.