Capacity & capability building for applied dementia research in low- & middle-income countries: Two exemplars from South Asia.
Capacity & capability building for applied dementia research in low- & middle-income countries: Two exemplars from South Asia.
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DOI：
10.4103/ijmr.ijmr_2095_19
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发表时间：
2020-12
期刊：
影响因子：
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通讯作者：
SENSE-Cog Asia Collaboration
中科院分区：
文献类型：
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作者：
Leroi I;Vaitheswaran S;Sheikh S;Chaudhry N;Goswami SP;Miah J;Sakel M;Tofique S;Husain N;SENSE-Cog Asia Collaboration
与老龄化有关的认知和其他神经退行性疾病已成为中低收入国家的公共卫生优先事项。然而，基于背景的应用研究，以支持南亚痴呆症患者的认识，诊断和护理途径的发展在很大程度上仍然没有发展。这项研究的目的是使用在南亚的痴呆症的应用研究作为范例，如何实现个人层面的能力和能力建设的痴呆症研究。以变革理论为框架，我们通过六个领域将能力和能力建设嵌入到研究中：人（人力资源），研究诚信和治理，研究交付技能，国际协作工作，患者和公众参与（PPI）（提高认识，污名化和健康素养）和发展“路径”。对于每一个方面，都确定了发展目标以及如何实现这些目标。新的主要研究者，研究助理（包括结果评分员），研究协调员和干预实践者在印度，巴基斯坦和孟加拉国的八个研究中心接受了痴呆症研究的培训。培训在研究开始时提供，并通过助推器会议，使用研讨会，面对面会议，在线培训和视频链接会议。促进了国际合作，并提出了一项国际供资建议。每个研究中心共同创建PPI事件，以提高认识并为研究提供信息。招募途径和研究后勤促进了痴呆症诊断和护理途径的发展。在南亚应用痴呆症研究中嵌入能力和能力建设，促进了痴呆症研究的可持续性，这对开发诊断和护理途径至关重要。
Cognitive and other neurodegenerative conditions related to ageing have become public health priorities in low- and middle-income countries. However, contextually based, applied research to support the development of awareness, diagnosis and care pathways for people with dementia in South Asia is still largely undeveloped. This study was aimed to use applied research studies for dementia in South Asia as exemplars of how individual-level capacity and capability building for dementia research can be achieved. Using Theory of Change as a framework, we embedded capacity and capability building into the studies through six domains: people (human resources), research integrity and governance, study delivery skills, international collaborative working, patient and public involvement (PPI) (awareness raising, stigma and health literacy) and development of ‘pathways’. For each aspect, development goals were defined and how they would be achieved. New principal investigators, research assistants (including outcome raters), study coordinators and intervention practitioners were trained across eight study sites in India, Pakistan, and Bangladesh, for dementia research. Training was delivered at study start, and through booster sessions, using workshops, face-to-face sessions, online training and video-link sessions. International collaborations were fostered, leading to a proposal for international funding. Each study site co-created PPI events to raise awareness and to inform the research. The recruitment pathways and study logistics fostered the development dementia diagnosis and care pathways. Embedding capacity and capability building in applied dementia research in South Asia fosters the sustainability of dementia research, which is essential in developing diagnostic and care pathways.