Integrated and patient-centred management of Parkinson's disease: a network model for reshaping chronic neurological care.
Integrated and patient-centred management of Parkinson's disease: a network model for reshaping chronic neurological care.
复制标题
帕金森病的综合和以患者为中心的管理：重塑慢性神经系统护理的网络模型
DOI：
10.1016/s1474-4422(20)30064-8
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发表时间：
2020-07
期刊：
影响因子：
48
通讯作者：
Munneke, Marten
中科院分区：
文献类型：
--
作者：
Bloem, Bastiaan R.;Henderson, Emily J.;Dorsey, E. Ray;Okun, Michael S.;Okubadejo, Njideka;Chan, Piu;Andrejack, John;Darweesh, Sirwan K. L.;Munneke, Marten
慢性神经系统疾病是全球残疾的主要原因。然而，我们的卫生保健系统并不是为了满足许多慢性神经系统疾病患者的需要而设计的。护理是分散的，缺乏跨学科合作，缺乏及时获得服务和治疗的机会。此外，护理通常是反应性的，由于缺乏针对特定疾病的专门知识和没有充分利用非药物干预措施，复杂的问题得不到适当的管理。治疗计划往往侧重于疾病，而不是与它生活的个人，病人往往不参与临床决策。通过使用帕金森病作为模型条件，我们展示了一个以患者为中心的综合护理概念，其中包括以证据为基础的解决方案，以改善慢性神经系统疾病患者的医疗保健服务。我们预计，这种综合护理模式将提高患者的生活质量，为医疗保健专业人员创造一个积极的工作环境，并且价格合理。
Chronic neurological diseases are the leading cause of disability globally. Yet, our health-care systems are not designed to meet the needs of many patients with chronic neurological conditions. Care is fragmented with poor interdisciplinary collaboration and lack of timely access to services and therapies. Furthermore, care is typically reactive, and complex problems are managed inadequately because of a scarcity of disease-specific expertise and insufficient use of non-pharmacological interventions. Treatment plans tend to focus on the disease rather than the individual living with it, and patients are often not involved in clinical decision making. By use of Parkinson's disease as a model condition, we show an integrated care concept with a patient-centred perspective that includes evidence-based solutions to improve health-care delivery for people with chronic neurological conditions. We anticipate that this integrated care model will improve the quality of life for patients, create a positive working environment for health-care professionals, and be affordable.