Medical-Legal Partnership: Impact on Patients With Sickle Cell Disease
Medical-Legal Partnership: Impact on Patients With Sickle Cell Disease
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DOI：
10.1542/peds.2011-0082
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发表时间：
2011-12-01
期刊：
影响因子：
8
通讯作者：
Bliss, Lisa R.
中科院分区：
文献类型：
--
作者：
Pettignano, Robert;Caley, Sylvia B.;Bliss, Lisa R.
目的：确定卫生法律伙伴关系（HeLP）解决的法律问题类型，以及法律干预对儿童镰状细胞病（SCD）或其变体的影响。我们假设一个包括律师在内的跨学科团队将对影响SCD患者健康的社会决定因素产生积极影响。方法：回顾性查询HeLP数据库中2004年4月至2010年9月期间HeLP律师见过的所有诊断为SCD或其1种变体的患者。在这组患者中收集的数据包括患者/客户的收入水平、最初出现的问题、在法律检查期间发现的任何患者/父母/监护人问题，以及所提供的法律援助类型。计算估计的年化财务结果。结果：2004年4月至2010年9月，有76名SCD患儿的71名家长/监护人被转介到HeLP进行法律干预。在71名父母/监护人中，有33人的生活水平低于联邦贫困线的100%。在71名家长/监护人中，初步发现106宗个案有问题；106个问题中有51个与孩子直接相关。在法律审查期间，又发现了93个问题。在106个案例中，99个已经结案，其中21个产生了可衡量的收益。结论：在一组SCD儿童家庭中，将获得法律服务作为护理计划的一部分对这些患者/父母/监护人产生了积极的影响。这种影响直接归因于HeLP的干预。儿科2011;128: e1482-e1488
OBJECTIVE: To determine the types of legal problems addressed by the Health Law Partnership (HeLP) and the impact of the legal interventions in pediatric patients with sickle cell disease (SCD) or its variants. We hypothesized that an interdisciplinary team that includes lawyers would positively affect the social determinants of health that affect patients with SCD.METHODS: The HeLP database was retrospectively queried for all patients with the diagnosis of SCD or 1 of its variants who had been seen by the lawyers of HeLP between April 2004 and September 2010. Data collected in this cohort of patients included income level of the patient/client, the initial presenting problems, any patient/parent/guardian problems identified during the legal checkup, and the type of legal assistance provided. Estimated annualized financial outcomes were calculated.RESULTS: From April 2004 through September 2010, 71 parents/guardians with 76 children with SCD were referred to the HeLP for legal intervention. Of the 71 parents/guardians, 33 were at < 100% of the federal poverty level. There were 106 initial case problems identified in the 71 parents/guardians; 51 of 106 problems were directly related to the child. An additional 93 issues were identified during the legal checkup. Of 106 cases, 99 were closed with 21 resulting in a measurable gain of benefits.CONCLUSIONS: In a cohort of families of children with SCD, incorporating access to legal services as part of the care plan resulted in a positive impact on these patients/parents/guardians. The impact was directly attributable to the intervention of the HeLP. Pediatrics 2011;128:e1482-e1488