Health-related quality of life in nephrology research and clinical practice.
Health-related quality of life in nephrology research and clinical practice.
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肾脏病学研究和临床实践中与健康相关的生活质量。
DOI：
10.1111/j.1525-139x.2005.18206.x
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发表时间：
2005
期刊：
影响因子：
--
通讯作者：
Kimmel,PaulL
中科院分区：
文献类型：
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作者：
Unruh,MarkL;Weisbord,StevenD;Kimmel,PaulL
身体、心理和生活方式的障碍以及身体和情绪症状已被证明会影响依赖肾脏替代治疗的患者的健康相关生活质量 (HRQOL)。 HRQOL 测量作为改善临床护理的工具的价值已得到患者、临床研究人员和医疗保健提供者的认可。 HRQOL 评估的潜在重要性在于它提供的附加信息及其对患者和医生之间的临床决策过程的影响。希望纳入 HRQOL 测量来改善患者护理的肾脏提供者仍然面临着许多挑战。这些挑战包括临床医生对 HRQOL 概念模型的理解、有助于当前 HRQOL 文献的科学过程的质量、临床医生将 HRQOL 信息纳入临床实践的意愿，以及在繁忙的实践环境中收集和应用 HRQOL 数据的逻辑困难。可以说，优化 HRQOL 可能是医疗团队对肾衰竭患者产生的最重大影响。为了在护理点实施 HRQOL 评估，提供者可以考虑使用计算机自适应测试和使用项目反应理论的评分算法，这将为解释个体之间的变化提供足够的可靠性。此外，持续发布的规范、随机对照试验的结果以及研究者和临床医生的持续经验将有助于 HRQOL 的有效评估和解释。
Physical, psychosocial, and lifestyle disturbances, along with physical and emotional symptoms, have been shown to impact the health‐related quality of life (HRQOL) of those dependent on renal replacement therapy. The value of HRQOL measurement as a tool to improve clinical care has been recognized by patients, clinical investigators, and health care providers. The potential importance of HRQOL assessment lies in the additional information it provides and the impact it has on the clinical decision‐making process between a patient and a physician. There remain a multitude of challenges facing renal providers who wish to incorporate HRQOL measurement to improve patient care. These challenges include the clinician's understanding of the conceptual model of HRQOL, the quality of the scientific process that contributed to the current literature on HRQOL, a willingness of the clinician to incorporate HRQOL information into clinical practice, and the logistic difficulties of collecting and applying HRQOL data in a busy practice setting. Arguably, optimizing HRQOL may be the most substantial impact the health care team will have on the person with kidney failure. In order to implement HRQOL assessment at the point of care, providers may consider using computer adaptive testing and scoring algorithms using item response theory, which will allow adequate reliability for interpretation of change among individuals. Moreover, the effective assessment and interpretation of HRQOL will be aided by continued publication of norms, outcomes of randomized controlled trials, and continued experience of investigators and clinicians.