Investigating data accessibility of personal health apps
Investigating data accessibility of personal health apps
复制标题
调查个人健康应用程序的数据可访问性
DOI：
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复制
发表时间：
2019
期刊：
影响因子：
--
通讯作者：
E. Choe
中科院分区：
文献类型：
--
作者：
Yoojung Kim;Bongshin Lee;E. Choe
目的尽管自我跟踪数据可能提供潜在的价值，但我们对人们在多大程度上可以访问他们的数据知之甚少。我们这篇文章的目标是揭示市场上个人健康应用程序的数据可访问性的现状--人们可以访问他们的数据的程度。材料和方法我们回顾了App Store中的240款个人健康应用，从中选出了45款支持半自动跟踪的应用。我们使用两个维度来表征这些应用程序的数据可访问性-数据访问方法和数据类型。结果超过90%的样本应用程序(n=41)提供了某些类型的数据访问支持，包括与健康平台(即Apple Health)同步数据、文件下载和应用程序接口。然而，面向外行人的两种可接近的数据访问方法-健康平台和文件下载-通常会对数据格式、粒度和数据量施加很大限制，这限制了人们轻松地重新调整数据的用途。讨论收集个人数据的人应该可以访问这些数据，但现有的方法缺乏对人们访问细粒度数据的足够支持。缺乏个人健康数据模式的标准，以及市场条件的频繁变化，是获得数据的另一个障碍。结论许多利益相关者，包括患者、医疗保健提供者、研究人员、第三方开发人员和普通公众，都依赖数据可访问性来利用个人数据来实现各种目标。因此，在设计个人健康应用程序和健康平台时，应将提高数据可访问性视为一个重要因素。
Objective Despite the potential values self‐tracking data could offer, we have little understanding of how much access people have to “their” data. Our goal of this article is to unveil the current state of the data accessibility—the degree to which people can access their data—of personal health apps in the market. Materials and Methods We reviewed 240 personal health apps from the App Store and selected 45 apps that support semi‐automated tracking. We characterized the data accessibility of these apps using two dimensions—data access methods and data types. Results More than 90% of our sample apps (n = 41) provide some types of data access support, which include synchronizing data with a health platform (ie, Apple Health), file download, and application program interfaces. However, the two approachable data access methods for laypeople—health platform and file download—typically put a significant limit on data format, granularity, and amount, which constrains people from easily repurposing the data. Discussion Personal data should be accessible to the people who collect them, but existing methods lack sufficient support for people in accessing the fine‐grained data. Lack of standards in personal health data schema as well as frequent changes in market conditions are additional hurdles to data accessibility. Conclusions Many stakeholders including patients, healthcare providers, researchers, third‐party developers, and the general public rely on data accessibility to utilize personal data for various goals. As such, improving data accessibility should be considered as an important factor in designing personal health apps and health platforms.
影响因子：
9.3
作者：
Mandl KD;Mandel JC;Kohane IS
通讯作者：
Kohane IS
DOI：
10.1001/jama.2016.12858
发表时间：
2016-09-20
期刊：
JAMA
影响因子：
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作者：
Jakicic JM;Davis KK;Rogers RJ;King WC;Marcus MD;Helsel D;Rickman AD;Wahed AS;Belle SH
通讯作者：
Belle SH