Data, Data, Everywhere: Uncovering Everyday Data Experiences for People with Intellectual and Developmental Disabilities

Data, Data, Everywhere: Uncovering Everyday Data Experiences for People with Intellectual and Developmental Disabilities
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数据,数据,无处不在:为智力和发育障碍人士揭示日常数据体验

DOI:
10.1145/3544548.3581204
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发表时间:
2023
期刊:
SIGCHI Conference on Human Factors in Computing Systems
影响因子:
--
通讯作者:
Szafir, Danielle Albers
Szafir, Danielle Albers
中科院分区:
--
文献类型:
--
作者:
Wu, Keke;Tran, Michelle Ho;Petersen, Emma;Koushik, Varsha;Szafir, Danielle Albers

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数据无处不在,但可能不是每个人都可以访问。传统的数据可视化工具和指南往往没有积极考虑智力和发育障碍(IDD)患者的具体需求和能力,使他们被排除在数据驱动的活动之外,容易受到道德问题的影响。为了了解IDD患者对数据的需求和挑战,我们对IDD患者及其护理人员进行了15次半结构化访谈。我们的算法访谈方法将数据置于IDD患者的生活经历中,以揭示他们日常生活中隐藏的数据。根据调查结果和观察结果,我们描述了他们如何概念化数据,何时何地使用数据,以及他们与数据交互时存在哪些障碍。我们使用我们的研究结果作为一个透镜,重新想象可视化在数据可访问性中的作用,并建立一个关键的认知可访问可视化的近期研究议程。
Data is everywhere but may not be accessible to everyone. Conventional data visualization tools and guidelines often do not actively consider the specific needs and abilities of people with Intellectual and Developmental Disabilities (IDD), leaving them excluded from data-driven activities and vulnerable to ethical issues. To understand the needs and challenges people with IDD have with data, we conducted 15 semi-structured interviews with individuals with IDD and their caregivers. Our algorithmic interview approach situated data in the lived experiences of people with IDD to uncover otherwise hidden data encounters in their everyday life. Drawing on findings and observations, we characterize how they conceptualize data, when and where they use data, and what barriers exist when they interact with data. We use our results as a lens to reimagine the role of visualization in data accessibility and establish a critical near-term research agenda for cognitively accessible visualization.
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