A National Profile Of End-Of-Life Caregiving In The United States
A National Profile Of End-Of-Life Caregiving In The United States
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DOI：
10.1377/hlthaff.2017.0134
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发表时间：
2017-07-01
期刊：
影响因子：
9.7
通讯作者：
Wolff, Jennifer L.
中科院分区：
文献类型：
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作者：
Ornstein, Katherine A.;Kelley, Amy S.;Wolff, Jennifer L.
到目前为止，对老年人临终照顾者经历的了解来自于仅限于特定疾病和所谓的主要照顾者的研究，这些研究依赖于方便样本中人们的回忆。使用2011年具有全国代表性的前瞻性数据，我们发现，90万名65岁及以上的社区居住医疗保险受益人在随后的12个月内死亡，他们得到了230万护理人员的支持。这些照顾者中近十分之九没有报酬。与其他照顾者相比，临终照顾者每周提供的照顾时间几乎是其他照顾者的两倍，特别是在配偶照顾者的情况下，他们报告了更多与照顾有关的挑战。然而，老年人在生命的尽头并不比其他老年人更有可能获得政府，州或私人保险资助的养老金。为了满足老年人在生命结束时的需要，他们的无酬照顾者必须得到更多的承认，并扩大获得支助服务的机会。
To date, knowledge of the experiences of older adults' caregivers at the end of life has come from studies that were limited to specific diseases and so-called primary caregivers and that relied on the recollections of people in convenience samples. Using nationally representative, prospective data for 2011, we found that 900,000 community-dwelling Medicare beneficiaries ages sixty-five and older who died within the following twelve months received support from 2.3 million caregivers. Nearly nine in ten of these caregivers were unpaid. Compared to other caregivers, end-of-life caregivers provided nearly twice as many hours of care per week and, especially in the case of spousal caregivers, reported more care-related challenges. Yet older adults at the end of life were not significantly more likely than other older adults to receive caregiving funded by government, state, or private insurance. To meet the needs of older adults at the end of life, their unpaid caregivers must receive greater recognition and expanded access to supportive services.