Experiences of families caring for an HIV-infected child in KwaZulu-Natal, South Africa: an exploratory study
Experiences of families caring for an HIV-infected child in KwaZulu-Natal, South Africa: an exploratory study
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DOI：
10.1080/09540121.2010.542123
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发表时间：
2011-01-01
影响因子：
1.7
通讯作者：
Demmer, Craig
中科院分区：
文献类型：
--
作者：
Demmer, Craig
在南非，2.5% 的儿童感染艾滋病毒。夸祖鲁-纳塔尔省是受疫情影响最严重的省份，也是感染艾滋病毒的孕妇人数最多的省份。本研究报告了一项定性研究，旨在评估参与照顾艾滋病毒/艾滋病儿童的人员的观点和经验。在夸祖鲁-纳塔尔省对 13 名艾滋病毒/艾滋病儿童的主要照顾者妇女和 12 名与艾滋病毒/艾滋病儿童和家庭一起工作的关键知情人进行了深入访谈。人们认为，普遍的贫困和与艾滋病毒相关的耻辱相结合会损害感染艾滋病毒/艾滋病的儿童的健康。照顾者的主要关注点是经济生存，几乎没有收入来满足包括孩子在内的人类基本需求。污名化的态度导致一些护理人员对孩子的病情保密，有时会忽视症状或延迟治疗。在这种情况下，被多重压力压垮的护理人员几乎得不到物质和情感支持。对艾滋病毒/艾滋病儿童照料者的支持小组干预措施可以成为一种有用的资源，只要它们能够共同满足照料者的经济和心理需求。需要在国家一级做出更强有力的承诺，减少贫困和与艾滋病毒相关的耻辱，以加强照顾艾滋病毒/艾滋病儿童的家庭的能力。
In South Africa, 2.5% of children are living with HIV. KwaZulu-Natal is the province most affected by the epidemic and has the highest number of pregnant women living with HIV. This study reports on a qualitative study to assess the views and experiences of those involved in caring for a child with HIV/AIDS. In-depth interviews were conducted in KwaZulu-Natal with 13 women who were the primary caregivers of a child with HIV/AIDS and 12 key informants who worked with children and families living with HIV/AIDS. The combination of widespread poverty and HIV-related stigma was perceived to compromise the health of a child with HIV/AIDS. Caregivers' primary focus was on economic survival and there was little income to meet basic human needs including the child's. Stigmatizing attitudes caused some caregivers to keep their child's sickness a secret and symptoms were sometimes ignored or treatment delayed. Little material and emotional support was available to caregivers who were overwhelmed by multiple stresses in this context. Support group interventions for caregivers of children with HIV/AIDS can be a useful resource provided that they jointly address the economic and psychological needs of caregivers. A stronger commitment at the national level to reduce poverty and HIV-related stigma is needed to strengthen the capacity of families who are caring for children with HIV/AIDS.