"Counting on the Group": Reconciling Online and Offline Social Support among Older Informal Caregivers
"Counting on the Group": Reconciling Online and Offline Social Support among Older Informal Caregivers
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“依靠群体”：调和老年非正式照顾者的线上线下社会支持
DOI：
10.1145/2858036.2858477
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发表时间：
2016
期刊：
影响因子：
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通讯作者：
M. Lewkowicz
中科院分区：
文献类型：
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作者：
M. Tixier;M. Lewkowicz
意识到亲属在照顾失去自主权的人时面临的巨大工作量，导致研究重点关注如何减轻非正式护理人员的负担。其中，旨在提供社会支持并消除护理任务可能造成的孤立感的服务和设备显得很重要。然而，人们对非正式护理人员在实践中真正重视和寻求的社会支持知之甚少。为了填补这一空白，我们进行了一项多地点研究，重点关注老年非正式护理人员，因为他们数量众多且技术经验较低。我们的研究强调，成为团体的一部分是帮助非正式护理人员感到自己并不孤单、继续休闲活动、向他人学习以及持续参与有组织的活动的关键因素。通过这种理解，我们讨论了社会技术方法中的设计机会，以补充线上和线下的社会支持。
Awareness of the huge amount of work faced by relatives in caring for a person suffering from a loss of autonomy has led to research focusing on ways to ease the burden on informal caregivers. Among them, services and devices aimed at providing social support and fighting the isolation that may be caused by the caregiving tasks appear important. However, little is known about the social support informal caregivers actually value and look for in practice. To fill this gap, we conducted a multi-sited study, focusing on older informal caregivers, because they are numerous and have lower experience with technology. Our study highlights that being part of a group is a key element in helping informal caregivers to feel that they are not alone, continue leisure activities, learn from others and sustain participation in organized activities. Through this understanding, we discuss design opportunities in a sociotechnical approach complementing online and offline social support.