The meaning of the survivor identity for women with breast cancer
The meaning of the survivor identity for women with breast cancer
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DOI：
10.1016/j.socscimed.2008.03.036
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发表时间：
2008-07-01
影响因子：
5.4
通讯作者：
Kaiser, Karen
中科院分区：
文献类型：
--
作者：
Kaiser, Karen
“幸存者”已经成为文化和癌症话语中无处不在的，基本上毫无疑问的术语。虽然轶事证据表明，乳腺癌患者对幸存者的形象和话语吹毛求疵，但女性认同或拒绝幸存者身份的程度尚未得到实证研究。本文探讨了乳腺癌治疗的妇女是否接受生存。数据来自39名美国女性的深度访谈，这些女性在访谈前3-18个月完成了乳腺癌治疗。尽管生存权具有积极意义，但许多妇女改变了生存权的含义或拒绝生存权。特别是，幸存者的话语疏远了那些与复发威胁作斗争的女性、那些认为自己的癌症经历还没有严重到值得这个称号的女性，或者那些渴望私人疾病经历的女性。这些发现说明，我们的文化概念的癌症，以充分反映生活经验，并强调个人如何积极“工艺”疾病的含义失败。(C)2008爱思唯尔有限公司保留所有权利。
"Survivor" has become a ubiquitous and largely unquestioned term in culture and cancer discourse. While anecdotal evidence suggests women with breast cancer find fault with survivor images and discourse, the extent to which women identify with or reject the survivor identity has not been empirically studied. This paper examines whether women treated for breast cancer embrace survivorship. Data come from 39 in-depth interviews with women in the United States who completed treatment for breast cancer 3-18 months prior to the interview. Despite the positive meanings attached to survivorship, many women altered the meaning of survivorship or rejected survivorship. In particular, the survivor discourse alienated women who struggle with the threat of recurrence, who feet their cancer experience was not severe enough to merit this title, or who desire a private disease experience. These findings illustrate the failure of our cultural conceptions of cancer to adequately reflect lived experience and highlight how individuals actively "craft" illness meanings. (C) 2008 Elsevier Ltd. All rights reserved.