Creating a population-based linked health database: A new resource for health services research
Creating a population-based linked health database: A new resource for health services research
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DOI：
10.1007/bf03403934
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发表时间：
1998-07-01
影响因子：
4.3
通讯作者：
Sheps, SB
中科院分区：
文献类型：
--
作者：
Chamberlayne, R;Green, B;Sheps, SB
随着健康利用和结果信息的可用性对卫生保健研究人员和政策制定者变得越来越重要，连接个人特定健康数据的能力成为一个关键目标。不列颠哥伦比亚省通过建立在保健系统登记的所有人的历史档案，并通过将各种方案档案与这一“协调”档案联系起来，实现了基于人口的行政保健数据库的整合。这些联系在将服务事件与具体个人的登记记录相匹配方面取得了罕见的成功。这一成功使研究项目得以提出，否则这些项目是不可行的，并启动了关于研究访问链接数据的政策和程序的制定。这些政策和程序包括一个框架，用于解决围绕数据链接的道德问题。随着保密问题的持续关注，这些关联数据为卫生服务研究和规划提供了宝贵的资源。
As the availability of both health utilization and outcome information becomes increasingly important to health care researchers and policy makers, the ability to link person-specific health data becomes a critical objective. The integration of population-based administrative health databases has been realized in British Columbia by constructing an historical file of all persons registered with the health care system, and by probabilistically linking various program files to this 'coordinating' file. The linkages have achieved a high rare of success in matching service events to person-specific registration records. This success has allowed research projects to be proposed which would otherwise not have been feasible, and has initiated the development of policies and procedures regarding research access to linked data. These policies and procedures include a framework for addressing the ethical issues surrounding data linkage. With continued attention confidentiality issues, these linked data present a valuable resource for health services research and planning.