Breast cancer in young families: a qualitative interview study of fathers and their role and communication with their children following the diagnosis of maternal breast cancer
Breast cancer in young families: a qualitative interview study of fathers and their role and communication with their children following the diagnosis of maternal breast cancer
复制标题
DOI：
10.1002/pon.1387
复制
发表时间：
2009-01-01
期刊：
影响因子：
3.6
通讯作者：
Stein, Alan
中科院分区：
文献类型：
--
作者：
Forrest, Gillian;Plumb, Caroline;Stein, Alan
目的：探讨母亲乳腺癌确诊后的父子沟通，了解其对疾病影响的认识差异，找出其对支持和信息需求的差距。采访是在英国牛津郡的家中进行的，采访对象是父亲和孩子。受试者包括26位丈夫患有早期乳腺癌的父亲和31位年龄在6岁到18岁之间的孩子。结果：父亲们图形化地描述了他们对伴侣患乳腺癌的消息的反应，以及他们试图为伴侣提供支持和维持孩子正常的家庭生活。父亲们热衷于安抚和保护孩子，但经常说他们缺乏关于乳腺癌的足够信息--特别是治疗的副作用。父亲有时没有意识到孩子的痛苦程度，有些人将孩子的反应解读为“行为不端”或“粗鲁”。孩子们经常敏锐地意识到父亲的情绪状态，并表达了保护他的愿望。一些父亲希望有机会与临床医生直接谈论孩子，但不想为自己或孩子争取临床时间。结论：这项研究表明，临床医生可以通过更多地以家庭为中心来改善他们对乳腺癌患者的护理。父亲通常需要更多的信息和准备，了解疾病及其治疗(特别是副作用)对母亲的可能影响，以及不同年龄的孩子可能对情绪压力做出的反应。临床医生需要做好准备，主动提出与青少年交谈。版权所有(C)2008 John Wiley&Sons，Ltd.
Objective: To explore father-child communication following the diagnosis of maternal breast cancer, examine disparities in their understandings of the impact of the illness, and identify gaps in their need for support and information.Methods: The design is the qualitative interview study with thematic analysis. The interviews were home-based with fathers and children in Oxfordshire, UK. The participants were 26 fathers whose partners had early breast cancer and 31 of their children aged between 6 and 18 years.Results: Fathers described graphically their reaction to news of their partner's breast cancer and their attempts to provide support for their partners and maintain normal family life for their children. Fathers were keen to reassure and protect children but often said that they lacked sufficient information about breast cancer-especially side effects of treatments. Fathers sometimes did not recognise the extent of their children's distress and some interpreted their children's reactions as 'bad behaviour' or 'rudeness'. Children were often acutely aware of the father's emotional state, and expressed a wish to protect him. Some fathers would have liked an opportunity to talk to a clinician directly about the children but did not want to claim clinical time for themselves or their children.Conclusion: This study suggests that clinicians could improve their care of breast cancer patients by being more family-centred. Fathers routinely need more information and preparation about the likely impact of the illness and its treatment (especially side effects) on the mother, and how children of different ages may react to the emotional strain. Clinicians need to be prepared to offer to talk to teenagers. Copyright (c) 2008 John Wiley & Sons, Ltd.