Integrating REDCap patient-reported outcomes with the HealtheIntent population health platform: proof of concept.

Integrating REDCap patient-reported outcomes with the HealtheIntent population health platform: proof of concept.
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DOI:
10.1093/jamiaopen/ooad074
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发表时间:
2023-10
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影响因子:
2.1
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--
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其他
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患者报告的结果测量(PROMs)对于推动以患者为中心的护理和了解患者对其健康状况、生活质量和所接受护理的整体有效性的看法至关重要。prom越来越多地用于临床和研究环境,但从不同系统收集数据的机制可能很麻烦。作为FDA真实世界证据示范项目的一部分,我们用REDCap收集的prom丰富了Cerner电子健康记录(EHR)中的常规护理临床数据。我们使用SSIS、sFTP和REDCap应用程序编程接口将这两个数据源聚合到Cerner HealtheIntent人口健康平台中。我们成功地构建了包含REDCap和EHR数据的仪表板、报告和数据集。这种技术上简单明了的方法使用常用的临床和研究工具,可以很容易地被其他人采用和调整,以更好地将prom与临床数据源集成在一起。
Patient-reported outcome measures (PROMs) are critical to drive patient-centered care and to understanding patients’ perspectives on their health status, quality of life, and the overall effectiveness of the care they receive. PROMs are increasingly being used in clinical and research settings, but the mechanisms to aggregate data from different systems can be cumbersome. As part of an FDA Real-World Evidence demonstration project, we enriched routine care clinical data from our Cerner electronic health record (EHR) with PROMs collected using REDCap. We used SSIS, sFTP, and the REDCap Application Programming Interface to aggregate both data sources into the Cerner HealtheIntent Population Health Platform. We successfully built dashboards, reports, and datasets containing both REDCap and EHR data collected prospectively. This technically straightforward approach using commonly available clinical and research tools can be readily adopted and adapted by others to better integrate PROMs with clinical data sources.
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