Current Unmet Needs of Cancer Survivors: Analysis of Open-Ended Responses to the American Cancer Society Study of Cancer Survivors II
Current Unmet Needs of Cancer Survivors: Analysis of Open-Ended Responses to the American Cancer Society Study of Cancer Survivors II
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DOI：
10.1002/cncr.28951
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发表时间：
2015-02-15
期刊：
影响因子：
6.2
通讯作者：
Sharma, Dinghy Kristine B.
中科院分区：
文献类型：
--
作者：
Burg, Mary Ann;Adorno, Gail;Sharma, Dinghy Kristine B.
癌症幸存者在治疗后的许多年里可能会继续经历与他们的癌症经历相关的心理和生理需求。根据癌症类型和幸存者特征对这些需求进行规范可能会导致更好的预防方法和临床反应。通过对2年、5年和10年癌症幸存者的调查，研究人员采用了混合方法来检查对一个关于当前未满足需求的开放式问题的回答。方法采用定性技术从开放式回答中编码未满足需求的主题。然后用定量技术检查这些主题，以描述幸存者的疾病亚组和人口亚组中未满足需求的频率。结果未满足需求的开放式问卷共有1514份回复。受访者的年龄从24岁到97岁不等，女性比例更高，18%是少数民族（黑人和西班牙裔）。确定了16个未满足需求的主题。未满足需求的数量和类型与癌症治疗后的时间无关。乳腺癌幸存者比其他幸存者确定了更多未满足的需求。男性幸存者，尤其是前列腺癌幸存者认为个人控制问题是当前的需要。年龄较大的癌症幸存者发现未满足的需求平均比年轻的幸存者少。这个关于未满足需求的开放式问题的分析扩展了我们对癌症幸存者如何看待与癌症相关的问题的理解。癌症相关需求如何随时间而变化，如何因性别、种族和民族而不同，以及个人控制问题如何变得明显，这些都是需要进一步研究的探究领域。癌症2015;121:623 - 630。(c) 2015美国癌症协会。定性技术用于从对癌症幸存者的大型调查的开放式答复中编码未满足需求的主题。确定了16个未满足需求的主题。
BACKGROUNDCancer survivors may continue to experience psychosocial and physical needs related to their cancer experience for many years after treatment. The specification of these needs across cancer types and by survivor characteristics may lead to better prevention approaches and clinical responses. Mixed methods were used to examine responses to an open-ended question about current unmet needs from a survey of 2-, 5-, and 10-year cancer survivors.METHODSQualitative techniques were used to code themes of unmet needs from open-ended responses. These themes were then examined with quantitative techniques to describe the frequency of unmet needs across disease subgroups and demographic subgroups of survivors.RESULTSThere were 1514 responses to the open-ended question on unmet needs. Respondents ranged in age from 24 to 97 years and included proportionately more women, and 18% were minorities (black and Hispanic). Sixteen themes of unmet needs were identified. The number and type of unmet needs were not associated with the time since cancer treatment. Breast cancer survivors identified more unmet needs than other survivors. Male survivors and especially prostate cancer survivors identified personal control problems as current needs. Older cancer survivors identified fewer unmet needs on average than younger survivors.CONCLUSIONSThis analysis of an open-ended question on unmet needs extends our understanding of how cancer survivors perceive problems related to cancer. How cancer-related needs change over time and differ by sex, race, and ethnicity and how problems with personal control become manifest are areas of inquiry requiring further research. Cancer 2015;121:623-630. (c) 2015 American Cancer Society.Qualitative techniques are used to code themes of unmet needs from open-ended responses to a large survey of cancer survivors. Sixteen themes of unmet needs are identified.