Use of a Web 2.0 Portal to Improve Education and Communication in Young Patients With Families: Randomized Controlled Trial
Use of a Web 2.0 Portal to Improve Education and Communication in Young Patients With Families: Randomized Controlled Trial
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DOI：
10.2196/jmir.2425
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发表时间：
2013-08-01
影响因子：
7.4
通讯作者：
Nordfeldt, Sam
中科院分区：
文献类型：
--
作者：
Hanberger, Lena;Ludvigsson, Johnny;Nordfeldt, Sam
背景：糖尿病需要广泛的自我护理和全面的知识，使患者教育成为糖尿病自我管理的中心。Web 2.0系统有很大的潜力，以提高健康信息和开辟新的途径，为患者和从业者communication.Objective：开发一个Web门户网站，旨在促进自我管理，包括糖尿病相关的信息和社会网络功能，并研究其使用和影响，在儿科patients with diabetes.Methods：一个Web 2.0门户网站开发与患者，家长和从业者合作。它提供了与当地从业人员的交流，与同行的互动，以及获得相关信息和服务的机会。将瑞典两家儿科诊所的糖尿病儿童和青少年随机分为接受密码访问门户网站的一组或未访问门户网站的对照组（n=230），为期1年。所有受试者在第二个研究年期间都有访问权限。用户的活动是通过网站和页面访问记录的。健康相关生活质量（HRQOL），授权（DES），和信息质量（QPP）问卷在基线和1年和2年的研究后。临床数据来自瑞典儿科糖尿病质量注册SWEDIABKIDS.Results：有一个连续的流的网站访问，减少在夏季和圣诞节期间。在119/233个家庭（51%）中，有人访问了门户网站的第一个研究年和169/484（35%）的第二个研究年。干预组和对照组之间的结果变量没有差异。未发现不良治疗或自我护理影响。第一年母亲探望一次或多次的比例高于父亲（P
Background: Diabetes requires extensive self-care and comprehensive knowledge, making patient education central to diabetes self-management. Web 2.0 systems have great potential to enhance health information and open new ways for patients and practitioners to communicate.Objective: To develop a Web portal designed to facilitate self-management, including diabetes-related information and social networking functions, and to study its use and effects in pediatric patients with diabetes.Methods: A Web 2.0 portal was developed in collaboration with patients, parents, and practitioners. It offered communication with local practitioners, interaction with peers, and access to relevant information and services. Children and adolescents with diabetes in a geographic population of two pediatric clinics in Sweden were randomized to a group receiving passwords for access to the portal or a control group with no access (n=230) for 1 year. All subjects had access during a second study year. Users' activity was logged by site and page visits. Health-related quality of life (HRQOL), empowerment (DES), and quality of information (QPP) questionnaires were given at baseline and after 1 and 2 study years. Clinical data came from the Swedish pediatric diabetes quality registry SWEDIABKIDS.Results: There was a continuous flow of site visits, decreasing in summer and Christmas periods. In 119/233 families (51%), someone visited the portal the first study year and 169/484 (35%) the second study year. The outcome variables did not differ between intervention and control group. No adverse treatment or self-care effects were identified. A higher proportion of mothers compared to fathers visited once or more the first year (P