The ADVANCE network: accelerating data value across a national community health center network.

The ADVANCE network: accelerating data value across a national community health center network.
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DOI:
10.1136/amiajnl-2014-002744
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发表时间:
2014-07
期刊:
Journal of the American Medical Informatics Association : JAMIA
影响因子:
--
通讯作者:
Fields S
Fields S
中科院分区:
其他
文献类型:
--
作者:
DeVoe JE;Gold R;Cottrell E;Bauer V;Brickman A;Puro J;Nelson C;Mayer KH;Sears A;Burdick T;Merrell J;Matthews P;Fields S

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ADVANCE(Accelerating Data Value Across a National Community Health Center Network)临床数据研究网络(CDRN)由OCHIN社区健康信息网络与Health Choice Network和Fenway Health合作领导。ADVANCE CDRN将“横向”整合超过100万联邦合格医疗中心患者的门诊电子健康记录数据,并“纵向”整合这些患者的医院,健康计划和社区数据,这些患者通常在研究中代表性不足。具有不同专业知识的患者研究者、社区研究者和学术研究者将共同努力,以实现与数据集成、患者参与和招募以及简化监管政策制定相关的项目目标。通过加强参与组织的数据和研究基础设施,ADVANCE CDRN将作为一个“社区实验室”,将弱势和弱势患者纳入以患者为中心的结果研究,与我们网络中患者,诊所和社区的优先事项保持一致。
The ADVANCE (Accelerating Data Value Across a National Community Health Center Network) clinical data research network (CDRN) is led by the OCHIN Community Health Information Network in partnership with Health Choice Network and Fenway Health. The ADVANCE CDRN will ‘horizontally’ integrate outpatient electronic health record data for over one million federally qualified health center patients, and ‘vertically’ integrate hospital, health plan, and community data for these patients, often under-represented in research studies. Patient investigators, community investigators, and academic investigators with diverse expertise will work together to meet project goals related to data integration, patient engagement and recruitment, and the development of streamlined regulatory policies. By enhancing the data and research infrastructure of participating organizations, the ADVANCE CDRN will serve as a ‘community laboratory’ for including disadvantaged and vulnerable patients in patient-centered outcomes research that is aligned with the priorities of patients, clinics, and communities in our network.
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