'Until it ends, you never know...': Attending to the voice of adolescents who are facing the likely death of a parent
'Until it ends, you never know...': Attending to the voice of adolescents who are facing the likely death of a parent
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DOI：
10.1080/02682621.2013.779822
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发表时间：
2013-01-01
期刊：
影响因子：
--
通讯作者：
Chowns, Gillian
中科院分区：
文献类型：
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作者：
Chowns, Gillian
与许多以成年人为中心和成年人控制的关于癌症对家庭影响的研究相反，作者的行动研究项目优先考虑父母患重病的年轻人的声音。研究的主要发现，正如他们制作的DVD所展示的，是年轻人：与父母的生命受到威胁的疾病所固有的孤立感和无处不在的不确定感作斗争;更喜欢支持和理解而不是保护和搪塞;不喜欢拖延和欺骗，更喜欢被告知和参与;希望尽可能全面和尽快地被告知真相。提交人认为，根据他们的证据，所有希望与面临父母可能死亡的人接触和支持他们的人都需要更明确地认识到年轻人的能力和胜任能力。
In contrast to much adult-focused and adult-controlled research on the impact of cancer on families, the author's action research project privileges the voice of young people whose parents were seriously ill. Its key findings, as demonstrated in the DVD they produced, were that the young people:Struggled with the sense of isolation and all-pervasive uncertainty inherent in the life-threatening illness of a parent.Preferred support and understanding to protection and prevarication.Disliked delay and deception, preferring to be informed and involved.Wished to be told the truth as fully and as soon as possible.This article focusses particularly on the teenagers in the research group and presents their voices and views unmediated by adult exegesis. The author argues, on the basis of their evidence, that a clearer recognition of the capacities and competences of young people is needed by all who wish to engage with and support those facing the likely death of a parent.