Facial cleft deformities: maternal perceptions regarding causes and interventions.
Facial cleft deformities: maternal perceptions regarding causes and interventions.
复制标题
面裂畸形：母亲对原因和干预措施的看法。
作者：
F. V. van Staden;C. Gerhardt
采用开放式问卷调查了产妇对面部唇裂畸形原因的看法以及医疗干预期间的支持质量。样本由138名10岁以下儿童的母亲组成，她们参加了面部唇裂畸形诊所。对这些回答进行了内容分析并按主题分组。结果发现，在参加咨询会议后，受试者对面唇畸形原因的看法发生了显著变化。对科学验证的因果变量（如感染、药物、情境和遗传因素）的无知明显减少。咨询课程似乎在受试者理解和接受孩子的残疾方面发挥了至关重要的作用。他们对孩子们在综合医院和唇腭裂科接受治疗的评价既有沮丧，也有赞扬。关于加强支助的建议强调有必要提供可获得的信息，从分娩的综合医院医务人员那里得到更多的保证，组建支助小组，迅速诊断和转介到多专业单位，以及允许在手术前后在医院陪伴子女。对结果进行了讨论，并与现有文献联系起来。
Maternal perceptions regarding the causes of a facial cleft deformity as well as the quality of support during medical interventions were surveyed with an open ended questionnaire. The sample consisted of 138 mothers of children up to 10 years of age attending a facial cleft deformity clinic. The responses were content analysed and thematically grouped. It was found that the subjects' views regarding the causes of facial cleft deformities changed markedly after attending counselling sessions. Ignorance about scientifically verified causal variables such as infections, medication, situational and hereditary factors decreased appreciably. The counselling sessions appeared to play an essential role in the subjects' understanding and coming to terms with their children's deformity. Their comments concerning the children's treatment in general hospitals as well as the facial cleft unit included both frustration and praise. Suggestions on enhancing support emphasised the need for accessible information, greater reassurance from medical staff at the general hospitals where delivery took place, the formation of support groups, speedy diagnosis and referral to a multiprofessional unit as well as being allowed to be with their children in hospital before and after surgical interventions. The results were discussed and tied to the available literature.