Electronic real-time assessment of patient-reported outcomes in routine care—first findings and experiences from the implementation in a comprehensive cancer center
Electronic real-time assessment of patient-reported outcomes in routine care—first findings and experiences from the implementation in a comprehensive cancer center
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对常规护理中患者报告的结果进行电子实时评估——综合癌症中心实施的初步发现和经验
DOI：
10.1007/s00520-016-3127-0
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发表时间：
2016
影响因子：
3.1
通讯作者：
M. Schuler
中科院分区：
文献类型：
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作者：
F. Trautmann;L. Hentschel;B. Hornemann;A. Rentsch;Michael Baumann;G. Ehninger;Jochen Schmitt;M. Schuler
目的癌症患者遭受各种生理和精神方面的主诉。由于医生对症状的评估似乎不足以揭示患者疾病的全部范围，患者报告的结果(PRO)在现代癌症治疗中已变得至关重要。描述了系统的PRO在常规护理中的电子实时评估的实施和首批结果。方法首次到德国综合癌症中心就诊的连续患者被要求填写由标准化PRO测量组成的自适应自填式电子问卷。完成后，患者报告的数据被链接到患者的医疗档案，以便在第一次咨询治疗医生时进行讨论。对工作人员进行了访谈，以确定实施中的障碍。结果在160名癌症患者中，126人(79%；平均年龄63岁，67%的男性)同意参与。招募的患者数量随着时间的推移而增加。在参与的患者中，67%的人提供了所有PRO相关量表的完整信息。填写问卷平均需要31分钟(范围3-140分钟)。在参与的患者中，53.0%的患者需要心理肿瘤支持，62%的患者表现出中度至严重的心理社会苦恼。根据欧洲癌症研究与治疗组织生活质量问卷-核心30(EORTC QLQ-C30)的全球生活质量平均得分为55.2(SD±25.6)。结论综合肿瘤治疗需要以结构化、标准化和透明的方式考虑患者的疾病症状、生活质量、偏好和共病。我们的发现表明，一种自适应的、自我管理的电子评估工具，用于癌症患者报告广泛的PRO是可行的，并在现实环境中被患者很好地接受。
PurposeCancer patients suffer from a variety of physical and mental complaints. Since physician assessment of symptoms seems insufficient to reveal the complete range of patients’ ailments, patient-reported outcomes (PRO) have become of key importance in modern cancer treatment. The implementation and first results of a systematic electronic real-time assessment of PRO in routine care is described.MethodsConsecutive patients presenting for the first time to a German comprehensive cancer center were asked to fill in an adaptive self-administered electronic questionnaire consisting of standardized PRO measures. After completion, patient-reported data was linked to the patients’ medical files for discussion in the first consultation with the treating physician. Interviews with staff were conducted to identify barriers in implementation.ResultsOut of 160 cancer patients, 126 (79 %; mean age 63 years, 67 % males) agreed to participate. The number of recruited patients increased over time. Of participating patients, 67 % provided complete information on all PRO-related scales. On average, 31 min (range 3–140) were required to fill in the questionnaire. Of participating patients, 53.0 % comprised need for psychooncological support and 62 % revealed moderate to severe psychosocial distress. The mean score for global quality of life according to the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire-Core 30 (EORTC QLQ-C30) was 55.2 (SD ±25.6).ConclusionsComprehensive oncological treatment needs to consider disease symptoms, quality of life, preferences, and comorbidities of individual patients in a structured, standardized, and transparent way. Our findings indicate that an adaptive, self-administered electronic assessment tool for cancer patients to report a broad set of PRO can be feasibly implemented and is well accepted by patients in a realistic setting.
影响因子：
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作者：
Ashley Wilder Smith;B. Reeve;Keith M Bellizzi;L. Harlan;C. Klabunde;M. Amsellem;A. Bierman;R. Hays
通讯作者：
Ashley Wilder Smith;B. Reeve;Keith M Bellizzi;L. Harlan;C. Klabunde;M. Amsellem;A. Bierman;R. Hays
影响因子：
45.3
作者：
Fromme, EK;Eilers, KM;Beer, TM
通讯作者：
Beer, TM