Reduced quality of life in ICU survivors-the story behind the numbers: A mixed methods study
Reduced quality of life in ICU survivors-the story behind the numbers: A mixed methods study
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DOI：
10.1016/j.jcrc.2021.05.008
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发表时间：
2021-05-31
影响因子：
3.7
通讯作者：
van den Boogaard, Mark
中科院分区：
文献类型：
--
作者：
Geense, Wytske W.;de Graaf, Mirjam;van den Boogaard, Mark
目的：了解ICU生存者的日常功能，他们在ICU入院后一年报告生活质量（QoL）下降。材料和方法：两阶段混合方法研究设计。在入院前和一年后（第1阶段）使用SF-36问卷评估QoL。报告QoL降低的参与者被邀请进行深入访谈（第2阶段）。访谈数据使用PROMIS框架按主题编码。结果：在797名参与者中，173名（22%）报告生活质量降低，其中19名有目的地选择的患者接受了采访。与他们的问卷评分一致，大多数参与者将他们的生活质量描述为降低。他们患有身体、精神和/或认知问题，影响他们的日常生活，限制他们的爱好、工作和社交活动。一些受访者的生活质量没有发生变化;他们对活着表示感激，设定了新的生活优先事项，并且能够接受他们的生活局限性。结论：生活质量下降是由于身体，精神和认知健康问题，限制了参与者想做的事情。然而，生活质量不仅受危重病的影响，而且还受独立性、合并症和生活事件等因素的影响。注册：NCT 03246334（临床trials.gov）。(c)2021作者爱思唯尔公司出版这是一篇在CC BY许可证下的开放获取文章（http：//creativecommons.org/licenses/by/4.0/）。
Purpose: To gain insight into the daily functioning of ICU survivors who reported a reduced quality of life (QoL) one year after ICU admission. Materials and methods: A two-phase mixed method study design. QoL was assessed using the SF-36 questionnaire before admission and after one year (Phase 1). Participants reporting a reduced QoL were invited for an in-depth interview (Phase 2). Interview data were coded thematically using the PROMIS framework. Results: Of the 797 participants, 173 (22%) reported a reduced QoL, of which 19 purposively selected patients were interviewed. In line with their questionnaire scores, most participants described their QoL as reduced. They suffered from physical, mental and/or cognitive problems, impacting their daily life, restricting hobbies, work, and social activities. A new balance in life, including relationships, had to be found. Some interviewees experienced no changes in their QoL; they were grateful for being alive, set new life priorities, and were able to accept their life with its limitations. Conclusions: Reduction in QoL is due to physical, mental, and cognitive health problems, restricting participants what they want to do. However, QoL was not only affected by the critical illness, but also by factors including independency, comorbidity, and life events. Registration: NCT03246334 (clinical trials.gov). (c) 2021 The Authors. Published by Elsevier Inc. This is an open access article under the CC BY license (http:// creativecommons.org/licenses/by/4.0/).