Classification of Functioning and Impairment: The Development of ICF Core Sets for Autism Spectrum Disorder
Classification of Functioning and Impairment: The Development of ICF Core Sets for Autism Spectrum Disorder
复制标题
DOI：
10.1002/aur.1335
复制
发表时间：
2014-02-01
期刊：
影响因子：
4.7
通讯作者：
Zwaigenbaum, Lonnie
中科院分区：
文献类型：
--
作者：
Bolte, Sven;de Schipper, Elles;Zwaigenbaum, Lonnie
鉴于自闭症谱系障碍(ASD)的可变性，准确的功能量化对于研究受影响个人的结局和生活质量至关重要。《国际功能、残疾和健康分类》(ICF)为描述与健康有关的功能提供了一个全面的、普遍接受的框架。ICF核心集是ICF类别的入围列表，选择这些类别是为了在描述患有特定疾病的人时捕获最相关的功能方面。在这篇文章中，作者预览了为ASD开发ICF核心集的过程，这是与世界卫生组织和ICF研究分会的合作。ICF儿童和青年版(ICF-CY)是从ICF衍生而来，旨在了解发展中儿童的具体情况。由于ASD会影响个人的整个生命周期，而ICF-CY包括所有ICF类别，因此ICF-CY将用于本项目(ICF(-CY)从现在开始)。ICF将在ICF核心集共识会议上确定将纳入ICF ASD核心集的ICF(-CY)类别，会上将综合四项预备研究(系统回顾、专家调查、患者和照顾者定性研究和临床横断面研究)的证据。将为ASD开发全面和简要的ICF核心集，目的是为研究和临床实践提供有用的标准，并为ASD在不同生活领域和整个生命周期内的功能和损害产生一种共同语言。自闭症研究报告2014，7：167-172。(C)2013年国际自闭症研究学会，Wiley期刊公司。
Given the variability seen in Autism Spectrum Disorder (ASD), accurate quantification of functioning is vital to studying outcome and quality of life in affected individuals. The International Classification of Functioning, Disability and Health (ICF) provides a comprehensive, universally accepted framework for the description of health-related functioning. ICF Core Sets are shortlists of ICF categories that are selected to capture those aspects of functioning that are most relevant when describing a person with a specific condition. In this paper, the authors preview the process for developing ICF Core Sets for ASD, a collaboration with the World Health Organization and the ICF Research Branch. The ICF Children and Youth version (ICF-CY) was derived from the ICF and designed to capture the specific situation of the developing child. As ASD affects individuals throughout the life span, and the ICF-CY includes all ICF categories, the ICF-CY will be used in this project (ICF(-CY) from now on). The ICF(-CY) categories to be included in the ICF Core Sets for ASD will be determined at an ICF Core Set Consensus Conference, where evidence from four preparatory studies (a systematic review, an expert survey, a patient and caregiver qualitative study, and a clinical cross-sectional study) will be integrated. Comprehensive and Brief ICF Core Sets for ASD will be developed with the goal of providing useful standards for research and clinical practice and generating a common language for functioning and impairment in ASD in different areas of life and across the life span. Autism Res 2014, 7: 167-172. (c) 2013 International Society for Autism Research, Wiley Periodicals, Inc.