Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana.

Research knowledge transfer to improve the care and support of adolescents with sickle cell disease in Ghana.
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DOI:
10.1111/hex.13573
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发表时间:
2022-10
影响因子:
3.2
通讯作者:
Pilnick, Alison
Pilnick, Alison
中科院分区:
医学2区
文献类型:
--
作者:
Poku, Brenda A.;Pilnick, Alison

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尽管研究人员、资助者、医疗保健和社区利益攸关方和决策者共同重视研究成果,但并不总是能有效地将研究成果转让给关键的知识用户,特别是在低收入和中等收入国家。2015-2019年在加纳进行的一项建构主义扎根理论研究探索了青春期与镰状细胞相关的疲劳,对实践和政策产生了许多影响。获得了同行审查的资金,以支持向相关利益攸关方传播这些调查结果。实施这一研究传播项目的关键步骤包括:(1)确定并吸引医疗保健和社区组织的目标利益攸关方;(2)为利益攸关方群体量身定做交流研究结果的工具;(3)设计互动研讨会,以促进知识分享和吸收。尽管新冠肺炎大流行,50个医疗保健和社区利益攸关方参加了传播讲习班。通过讨论,传播活动对最初的研究结果有了新的理解。通过讲习班,与会者确定了他们可以采取的具有文化价值和可操作的建议,以改善对加纳患有镰状细胞病的年轻人的护理和支持。讲习班结束后6个月的跟踪调查表明,一些积极的知识使用和益处。这一传播项目为研究人员和利益攸关方提供了一个独特的机会,让他们分享对研究结果的解释,并从战略上规划建议,以改善加纳以可持续发展为重点的年轻人的护理和支持。进一步的研究传播应继续以当地产生的知识为基础,包括对传播成果进行系统、长期的评估,并获得充足的资金。公众参与这项研究对研究传播项目至关重要。加纳镰刀细胞协会(库马西分会)积极支持该项目的发展、组织和促进。协会的家长成员、协会的执行成员和志愿者以及Komfo Anokye教学医院参与镰状细胞护理的卫生专业人员参加了项目讲习班。他们为知识的转移和吸收做出了贡献。
Effective transfer of research findings to key knowledge users, particularly in low‐ and middle‐income countries, is not always achieved, despite being a shared priority among researchers, funders, healthcare and community stakeholders and decision‐makers. A constructivist grounded theory study conducted in 2015–2019 in Ghana that explored sickle cell‐related fatigue in adolescence resulted in numerous implications for practice and policy. Peer‐reviewed funding was obtained to support disseminating these findings to relevant stakeholders. Key steps in implementing this study dissemination project included: (1) identifying and attracting target stakeholders from healthcare and community organizations; (2) tailoring tools for communication of research findings for the stakeholder groups and (3) designing interactive workshops to facilitate knowledge sharing and uptake. Despite the COVID‐19 pandemic, 50 healthcare and community stakeholders participated in the dissemination workshops. The dissemination activities contributed new layers of understanding to the original research findings through discussions. Through the workshops, participants identified culturally valuable and actionable recommendations that they could take forward to improve care and support for young people with sickle cell disease in Ghana. A follow‐up 6 months post the workshops indicated some positive knowledge usage and benefits. This dissemination project provided a unique opportunity for researchers and stakeholders to share in the interpretation of research findings and to strategically plan recommendations to improve SCD‐focused care and support for young people in Ghana. Further research dissemination should continue to be grounded in locally generated knowledge, include systematic, long‐term evaluation of dissemination outcomes and be adequately financed. Public involvement in this study was critical to the research dissemination project. The Sickle Cell Association of Ghana (Kumasi chapter) actively supported the project's development, organization and facilitation. Parent members of the Association, the Association's executive members and volunteers, and the health professionals involved in sickle cell care at the Komfo Anokye Teaching Hospital participated in the project workshops. They contributed to the knowledge transfer and uptake.
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