Male and female experiences of having fertility matters raised alongside a cancer diagnosis during the teenage and young adult years
Male and female experiences of having fertility matters raised alongside a cancer diagnosis during the teenage and young adult years
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DOI：
10.1111/j.1365-2354.2008.01003.x
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发表时间：
2009-07-01
影响因子：
2.1
通讯作者：
Sloper, P.
中科院分区：
文献类型：
--
作者：
Crawshaw, M. A.;Glaser, A. W.;Sloper, P.
讨论和管理潜在的生殖健康后遗症的青少年癌症是必不可少的和具有挑战性的组成部分，护理的多学科团队。尽管如此，研究仅限于成年幸存者的具体经历（例如精子库）或与生育有关的问题。这项基于扎根理论的研究对38名16-30岁的青少年癌症幸存者进行了深入的单一访谈，以绘制被告知治疗可能影响生育能力的经验范围。无论性别、年龄、是否丧失能力或是否提供生育保留服务，都强烈支持在诊断时被告知。年龄和生命阶段的影响似乎不如个人和社会福祉的威胁程度显着。妇女更有可能实现较低水平的理解有关的生理影响，报告以后的痛苦，缺乏生育力保存服务，并更频繁地重新审视这些决定的几个提供生育力保存。男性发现，总体而言，关于精子银行的决策很简单，并且无论结果如何，他们都对自己的选择感到满意。调查结果表明，年轻人可以科普这一信息的同时诊断，特别是当专业和父母的支持是相称的，对他们的特定影响。
Discussion and management of potential reproductive health sequelae of adolescent cancer are essential and challenging components of care for the multidisciplinary team. Despite this, research has been limited to specific experiences (e.g. sperm banking) or fertility-related concerns of adult survivors. This grounded theory study of 38 male and female survivors of adolescent cancer aged 16-30 years drew on in-depth single interviews to map the range of experiences of being advised that treatment might affect fertility. Strong support for being told at around diagnosis was found regardless of gender, age, incapacity or availability of fertility preservation services. Age and life stage appeared less significant for impact than the perceived level of threat to personal and social well-being. Women were more likely to achieve lower levels of comprehension about the physiological impact, to report later distress from lack of fertility preservation services and to revisit more frequently those decisions made by the few offered fertility preservation. Men found decision making about sperm banking straightforward on the whole and reported satisfaction with having the choice regardless of outcome. Findings suggest that young people can cope with this information alongside diagnosis especially when professional and parental support is proportionate to the particular impact on them.