High Incarceration Rates Among Black Men Enrolled In Clinical Studies May Compromise Ability To Identify Disparities
High Incarceration Rates Among Black Men Enrolled In Clinical Studies May Compromise Ability To Identify Disparities
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DOI：
10.1377/hlthaff.2013.1325
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发表时间：
2014-05-01
期刊：
影响因子：
9.7
通讯作者：
Krumholz, Harlan M.
中科院分区：
文献类型：
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作者：
Wang, Emily A.;Aminawung, Jenerius A.;Krumholz, Harlan M.
1978年，联邦政府限制了对监狱和监狱囚犯的医学研究，这是惩教机构数十年来不道德研究的结果。我们评估了这项政策对少数族裔人口健康结果研究的影响，特别是涉及黑人男性的研究，黑人男性被监禁的比例更高。具体地说，我们探索了监禁对由国家心肺和血液研究所资助的14项前瞻性临床研究随访率的影响。我们估计，在过去30年里，在这些研究中，黑人男性的高监禁率可能占到黑人男性随访损失的65%。在白人男性、黑人女性和白人女性中，监禁的影响要小得多。这些估计表明，这些研究检查健康结果中的种族差异以及了解这一群体的经历的能力可能会受到影响。我们认为，被监禁的社区招募的受试者应该被允许继续参与对参与者构成最小风险的观察性临床研究。
In 1978 the federal government restricted research on prison and jail inmates in medical studies, the result of decades of unethical research in correctional institutions. We evaluated the impact this policy has had on studies of health outcomes in minority populations, particularly studies involving black men, who are disproportionately incarcerated. Specifically, we explored the effect of incarceration on follow-up rates of fourteen prospective clinical studies funded by the National Heart, Lung, and Blood Institute. We estimated that during the past three decades high rates of incarceration of black men may have accounted for up to 65 percent of the loss to follow-up among black men in these studies. The impact of incarceration was far less among white men, black women, and white women. These estimates suggest that the ability of those studies to examine racial disparities in health outcomes, as well as to understand the experience of this group, could be compromised. We believe that community-recruited subjects who are incarcerated should be allowed to continue participating in observational clinical research that poses minimal risk to participants.