Structured Variation in Parental Beliefs about Autism

Structured Variation in Parental Beliefs about Autism
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DOI:
10.1177/0022146518820581
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发表时间:
2019-03-01
影响因子:
5
通讯作者:
DiSabatino, Lydia
DiSabatino, Lydia
中科院分区:
医学2区
文献类型:
--
作者:
McLeod, Jane D.;DiSabatino, Lydia

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我们使用 2011 年诊断和服务途径调查 (N = 1,420) 的数据,通过儿童的临床概况和父母对其孩子自闭症性质和原因的信念,评估将社会背景(种族民族、社会经济地位 [SES])与父母痛苦联系起来的概念模型。儿童的临床特征因社会背景而异;白人儿童以及受过高等教育且富裕的父母的孩子不太可能出现合并症,并且更有可能被诊断为阿斯伯格症。父母的信念也各不相同,少数族裔儿童的父母和社会经济地位较低的父母认为孩子的状况更加不确定,并且不太可能将其归因于遗传原因。收入较低的西班牙裔儿童的父母更有可能对孩子的状况感到不安。尽管父母的信念与痛苦具有独立的关联,但儿童的临床特征更能解释痛苦的变化。
We used data from the 2011 Survey of Pathways to Diagnosis and Services (N = 1,420) to evaluate a conceptual model linking social background (race-ethnicity, socioeconomic status [SES]) to parental distress through children's clinical profiles and parental beliefs about the nature and causes of their child's autism. Children's clinical profiles varied by social background; white children and children of more highly educated and affluent parents were less likely to experience comorbid conditions and were more likely to be diagnosed with Asperger's. Parental beliefs also varied such that parents of racial-ethnic minority children and parents of lower SES perceived their child's condition as more uncertain and were less likely to attribute it to genetic causes. Parents of Hispanic children and with lower incomes were more likely to be upset by the child's condition. Although parental beliefs had independent associations with distress, children's clinical profiles contributed more to explaining variation in distress.