How do people with cancer wish to be cared for in primary care? Serial discussion groups of patients and carers
How do people with cancer wish to be cared for in primary care? Serial discussion groups of patients and carers
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DOI：
10.1093/fampra/cml035
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发表时间：
2006-12-01
期刊：
影响因子：
2.2
通讯作者：
Murray, Scott A.
中科院分区：
文献类型：
--
作者：
Kendall, Marilyn;Boyd, Kirsty;Murray, Scott A.
背景。在大多数经济发达国家，患者、他们的非正式和专业护理人员以及政策制定者都呼吁在社区提供更多护理。 目标。让癌症患者及其护理人员参与设计一个框架，在初级保健中提供有效的癌症护理。方法。由 18 名癌症患者和护理人员组成的两个讨论小组在一年多的时间里每月在苏格兰南部举行会议。结果。癌症患者及其护理人员认为，从他们的角度来看，癌症旅程中的五个关键时刻尤其重要：诊断前后、治疗期间、出院后、复发时和最后几周。在每个关键时刻，都有五个主要问题值得关注：信息、沟通、公平、整体方法和以患者为中心的护理。利用这些，小组成员制定了针对疾病轨迹每个阶段的建议干预措施清单，并建议如何在初级保健中实施这些干预措施。如果患者愿意，主动和持续的接触被认为是社区癌症护理的核心。结论。癌症患者及其护理人员认为，初级保健在从首次就诊的整个癌症轨迹中提供以患者为中心和整体的连续性护理和信息方面具有重要而独特的作用。这项研究成功地将患者、护理人员和专业人士的观点引入到初级保健护理框架的开发中。
Background. In most economically developed countries, patients, their informal and professional carers and policy makers are calling for more care in the community.Objectives. To involve patients with cancer, and their carers, in designing a framework for providing effective cancer care in primary care.Methods. Two discussion groups comprising 18 people with current cancer and carers met monthly over a year in the south of Scotland.Results. Patients with cancer and their carers identified five key times in the cancer journey as being especially significant from their perspective: around diagnosis, during treatment, after discharge, at recurrence and the final weeks. At each key time, there were five major issues of concern: information, communication, equity, a holistic approach and patient-centred care. Using these, the group members developed a checklist of recommended interventions for each stage in the illness trajectory and suggested how they might be implemented in primary care. Proactive and ongoing contact, if wished by the patient, was considered the central plank of cancer care in the community.Conclusions. Patients with cancer and their carers believe that there is an important and unique role for primary care in offering continuity of care and information that is patient-centred and holistic, throughout the cancer trajectory, from first presentation. This study successfully brought patient, carer and professional perspectives to the development of a care framework for primary care.