A qualitative crossroads of rhythm and race: Black patients' experiences living with atrial fibrillation.
A qualitative crossroads of rhythm and race: Black patients' experiences living with atrial fibrillation.
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节律和种族的定性十字路口：黑人患者患有房颤的经历。
DOI：
10.1016/j.ahjo.2023.100293
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发表时间：
2023
期刊：
影响因子：
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通讯作者：
Magnani,JaredW
中科院分区：
文献类型：
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作者：
Mann,Harnoor;Johnson,AmberE;Ferry,Danielle;deAbrilCameron,Flor;Wasilewski,Julia;Hamm,Megan;Magnani,JaredW
重要性房颤（AF）结局中基于种族的差异有充分的记录，但很少有研究调查个人的生活经历，特别是在黑人个体中。我们的目的是确定患有AF的黑人个体所经历的共同主题和挑战。定性脚本被开发来评估焦点小组中参与者的观点。设置虚拟焦点小组。参与者三个焦点小组，每组4- 6名参与者（共16名参与者）从种族/少数民族参与者中招募的移动的关系代理，以提高房颤自我护理Trial.Main结果和measuresFocus组成绩单进行归纳编码，以确定共同的themes. ResultsAlmost所有参与者自我认同为黑人种族（n= 15，93.8%）。参与者大多为男性（62.5%），平均年龄为67岁（范围40-78）。确定了三个主题。首先，参与者描述了与AF相关的身体和精神负担。其次，参与者将AF描述为一种难以管理的疾病。最后，参与者确定了支持AF自我管理的关键原则（自我教育，社区支持和患者-提供者关系）。结论和相关性参与者报告AF是不可预测的，具有挑战性的管理，社会和社区支持是必不可少的。在这项定性研究中确定的社会和行为主题强调了需要量身定制的临床策略，AF自我管理，其中包括个人的社会context.Trial注册国家临床试验编号04075994。
ImportanceRace-based disparities in atrial fibrillation (AF) outcomes are well-documented, but few studies have investigated individuals' experiences of living with the condition, particularly among Black individuals.ObjectiveWe aimed to identify common themes and challenges experienced by individuals of Black race with AF.DesignA tailored, qualitative script was developed to assess the perspectives of participants in focus groups.SettingVirtual focus groups.ParticipantsThree focus groups of 4–6 participants (16 participants total) were recruited from the racial/ethnic minority participants in the Mobile Relational Agent to Enhance Atrial Fibrillation Self-care Trial.Main outcomes and measuresFocus group transcripts were inductively coded to identify common themes.ResultsNearly all participants self-identified as Black race (n= 15, 93.8 %). Participants were mostly male (62.5 %) with mean age of 67 (range 40–78) years. Three themes were identified. First, participants described physical and mental burdens associated with having AF. Second, participants described AF as being a condition that is difficult to manage. Lastly, participants identified key tenets to support self-management of AF (self-education, community support, and patient-provider relationships).Conclusions and relevanceParticipants reported AF is unpredictable and challenging to manage, and that social and community supports are essential. The social and behavioral themes identified in this qualitative research highlight the need for tailored clinical strategies for AF self-management which incorporate individuals' social contexts.Trial registrationNational Clinical Trial number 04075994.