The Sight Loss and Vision Priority Setting Partnership (SLV-PSP): overview and results of the research prioritisation survey process
The Sight Loss and Vision Priority Setting Partnership (SLV-PSP): overview and results of the research prioritisation survey process
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DOI：
10.1136/bmjopen-2014-004905
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发表时间：
2014-01-01
期刊：
影响因子：
2.9
通讯作者：
Zekite, Antra
中科院分区：
文献类型：
--
作者：
Rowe, Fiona;Wormald, Richard;Zekite, Antra
目的：视力丧失和视力优先设置伙伴关系旨在通过与患者，护理人员和临床医生的协商确定与视力丧失和视力有关的研究优先事项。这些优先事项可以用来通知资助机构的决定，并提高案件的额外research fund.Design：前瞻性调查的支持下，从詹姆斯·林德联盟。设置：英国全国国民保健服务（NHS）和非NHS。参与者：患者，护理人员和眼科保健专业人员。学术研究人员完全被排除在优先考虑的过程之外。该调查由患者团体、专业机构、会议和媒体传播，并可通过在线、电话、邮寄和其他形式（盲文和音频）完成。结果衡量：要求人们提交他们最希望看到研究回答的关于视力丧失和眼部疾病的预防、诊断和治疗的问题。数据评估小组对返回的调查问题进行了审查。在最后的workshops.Results：2220人回答产生4461提交跨越眼病类别的优先事项。65%的受访者患有视力丧失和/或眼部疾病。在初步数据分析后，仍有686份提交材料，分发给446名患者/护理人员和218名专业人员进行中期优先排序（不包括白内障和眼癌问题）。剩余的346个问题进行了讨论，在最后的优先级研讨会，以达成协议的顶级问题，每category.Conclusions：这项工作涉及到一个多元化的社区利益相关者产生广泛的条件和研究问题。在12个眼科疾病类别中确定了最优先的问题。
Objectives: The Sight Loss and Vision Priority Setting Partnership aimed to identify research priorities relating to sight loss and vision through consultation with patients, carers and clinicians. These priorities can be used to inform funding bodies' decisions and enhance the case for additional research funding.Design: Prospective survey with support from the James Lind Alliance.Setting: UK-wide National Health Service (NHS) and non-NHS.Participants: Patients, carers and eye health professionals. Academic researchers were excluded solely from the prioritisation process. The survey was disseminated by patient groups, professional bodies, at conferences and through the media, and was available for completion online, by phone, by post and by alternative formats (Braille and audio).Outcome measure: People were asked to submit the questions about prevention, diagnosis and treatment of sight loss and eye conditions that they most wanted to see answered by research. Returned survey questions were reviewed by a data assessment group. Priorities were established across eye disease categories at final workshops.Results: 2220 people responded generating 4461 submissions. Sixty-five per cent of respondents had sight loss and/or an eye condition. Following initial data analysis, 686 submissions remained which were circulated for interim prioritisation (excluding cataract and ocular cancer questions) to 446 patients/carers and 218 professionals. The remaining 346 questions were discussed at final prioritisation workshops to reach agreement of top questions per category.Conclusions: The exercise engaged a diverse community of stakeholders generating a wide range of conditions and research questions. Top priority questions were established across 12 eye disease categories.