Tailoring Research Recruitment for Acute Care Settings: Recommendations from People with Dementia and their Caregivers.
Tailoring Research Recruitment for Acute Care Settings: Recommendations from People with Dementia and their Caregivers.
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DOI：
10.1097/wad.0000000000000419
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发表时间：
2021-07-01
影响因子：
2.1
通讯作者：
Gilmore-Bykovskyi A
中科院分区：
文献类型：
--
作者：
Friz AM;Benson C;Mullen S;Block L;Gilmore-Bykovskyi A
迫切需要增加阿尔茨海默病和相关痴呆症（ADRD）研究的入学率和代表性。目前的招募方法主要集中在诊所和社区环境，尽管在不同人群中广泛使用，但对急性护理环境的参与最少。本研究的目的是检查意见，偏好和建议急性护理为基础的ADRD研究招募痴呆症患者和他们的照顾者。我们进行了半结构化的访谈，最近住院的痴呆症患者（N=3）和家庭照顾者（N=28）。访谈采用主题分析法进行分析。所有参与者都赞同急性护理作为ADRD研究招聘的适当时机，提供人际有效的研究人员和量身定制的招聘方法。与会者强调，这种方法应考虑急性护理方面的参与者的情况，不确定性和时间。参与者的建议告知了一个5步过程的设计，以指导急性护理背景下的ADRD研究招募。研究结果为痴呆症患者及其护理人员提供了关于急性护理研究参与机会的宝贵见解，并可以为这些环境中的扩大招聘提供信息。
There is a pressing need to increase enrollment and representation in Alzheimer’s disease and related dementia (ADRD) research. Current recruitment approaches focus largely on clinic and community settings, with minimal engagement of acute care environments despite their broad use across diverse populations. The objectives of this study were to examine views, preferences, and recommendations regarding acute care-based ADRD research recruitment among persons with dementia and their caregivers. We conducted semi-structured interviews with recently hospitalized persons with dementia (N=3) and family caregivers (N=28). Interviews were analyzed using thematic analysis. All participants endorsed acute care as an appropriate time for recruitment into ADRD research provided interpersonally effective research staff and a tailored recruitment approach. Participants emphasized this approach should consider the acute care context with respect for participant situation, uncertainty, and timing. Participant suggestions informed the design of a 5-step process to guide ADRD research recruitment in the context of acute care. Findings provide valuable insights from people with dementia and their caregivers regarding opportunities for research engagement surrounding acute care, and can inform expanded recruitment in these settings.