What “Coproduction” in Participatory Research Means From Participants’ Perspectives: A Collaborative Autoethnographic Inquiry
What “Coproduction” in Participatory Research Means From Participants’ Perspectives: A Collaborative Autoethnographic Inquiry
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从参与者的角度来看，参与式研究中的“合作生产”意味着什么：协作性的自我民族志调查
DOI：
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发表时间：
2022
期刊：
影响因子：
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通讯作者：
Lotte Mengel
中科院分区：
文献类型：
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作者：
L. Phillips;A. Larsen;Lotte Mengel
在参与式健康研究中，有疾病经历的人作为联合研究人员与学术研究人员一起参与知识的共同生产。一个中心思想是通过为共同研究人员的经验性、具体化知识创造空间来实现知识生产的民主化。参与式研究文献包括探索参与式研究中共同生产的复杂性的反思性分析。然而，尽管有民主理想，这些分析几乎总是由学术研究人员单独撰写。在本文中，两位具有帕金森病生活经验的联合研究人员和一位学术研究人员从他们自己的角度对参与式研究中的“共同生产”对参与者意味着什么进行了合作式的民族志调查。在此过程中，本文提出并说明了一种独特的合作自我民族志形式，作为一种参与性方法，使联合研究人员和学术研究人员能够通过跨个人叙述的对话来调查、撰写和出版有关联合生产的内容。它还介绍了调查中关于联合制作对参与者意味着什么的具体内部见解。
In participatory health research, people with lived experience of illness participate as co-researchers in the co-production of knowledge along with academic researchers. A central idea is to democratize knowledge production by creating space for co-researchers’ experiential, embodied knowledge. The participatory research literature includes reflexive analyses exploring the complexities of co-production in participatory research. However, despite the democratic ideals, these analyses are almost always written by academic researchers alone. In this article, two co-researchers with lived experience of Parkinson’s disease and an academic researcher carry out a collaborative autoethnographic inquiry into what “co-production” in participatory research means for participants from their own perspectives. In so doing, the article presents and illustrates a distinctive format for collaborative autoethnography as a participatory method that enables co-researchers and academic researchers to investigate, write, and publish about co-production together through dialogue across personal narratives. It also presents the specific insider insights the inquiry generated into what co-production means for participants.