Associated features of Asperger Syndrome and their relationship to parenting stress
Associated features of Asperger Syndrome and their relationship to parenting stress
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DOI：
10.1111/j.1365-2214.2008.00834.x
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发表时间：
2008-07-01
影响因子：
1.9
通讯作者：
Tuck, S.
中科院分区：
文献类型：
--
作者：
Epstein, T.;Saltzman-Benaiah, J.;Tuck, S.
背景研究表明，与非自闭症儿童的父母相比，自闭症儿童的父母所承受的压力更大。很少有研究专门研究阿斯伯格综合症 (AS) 人群中的养育压力。患有 AS 的儿童通常会出现相关的困难，例如感觉敏感和执行功能问题（即计划、抑制、转移设定）。本研究旨在研究养育压力，并考虑养育压力与 AS 的一些相关困难之间的关系。更具体地说，本研究的目的是证明以下内容：作为一个群体，患有 AS 的儿童的父母会报告养育压力水平升高，这一发现对母亲来说可能比父亲更重要；根据家长的报告，患有 AS 的儿童表现出执行功能受损以及感觉敏感性增强；家长对孩子的要求特征的报告将与他们自我报告的养育压力水平呈正相关。方法这项研究的参与者是苏格兰洛锡安地区 39 名 5 岁至 12 岁儿童的父母，反应率为 71%，他们完成了养育压力指数、执行功能行为评定量表和短期感觉概况。结果研究显示，AS 儿童的母亲和父亲都报告了较高的养育压力水平。养育压力。母亲的养育压力与孩子的障碍程度（包括执行功能障碍和感觉困难）之间存在显着的正相关。结论 养育患有 AS 的孩子所面临的挑战不应被低估。需要进一步的研究来探索儿童障碍在养育压力中所起的因果作用，以及哪些类型的干预措施可能对这些家庭最有帮助。
Background Studies have shown an increased level of stress in parents of autistic children relative to parents of non-autistic children. Few studies have examined parenting stress specifically within the Asperger Syndrome (AS) population. Children with AS often have associated difficulties such as sensory sensitivities and problems with executive functioning (i.e. planning, inhibiting, shifting set). This study was designed to study parenting stress as well as to consider the relationship between parenting stress and some of the associated difficulties of AS. More specifically, the aims of this study were to demonstrate the following: that, as a group, parents of children with AS would report elevated levels of parenting stress, a finding which may be more significant for mothers than fathers; that children with AS show impairment in executive functioning as well as heightened sensory sensitivity according to parent report; that parent report of their child's demanding characteristics would be positively associated with their self-reported levels of parenting stress.Methods Participants in this study were the parents of 39 children between the ages of 5 and 12 years, reflecting a 71% response rate, in the Lothian region of Scotland who completed The Parenting Stress Index, the Behavioural Rating Inventory of Executive Function and the Short Sensory Profile.Results The study revealed that both mothers and fathers of AS children reported elevated levels of parenting stress. There was a significant positive correlation between mother's parenting stress and the child's level of impairment, both with respect to executive dysfunction as well as sensory difficulties.Conclusion The challenges of parenting a child with AS should not be underestimated. Further study is needed to explore the causative role that child impairments play in parenting stress and what types of interventions may prove most helpful to these families.