Parents of childhood X-linked adrenoleukodystrophy: High risk for depression and neurosis
Parents of childhood X-linked adrenoleukodystrophy: High risk for depression and neurosis
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DOI：
10.1016/j.braindev.2007.12.012
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发表时间：
2008-08-01
影响因子：
1.7
通讯作者：
Kondo, Naomi
中科院分区：
文献类型：
--
作者：
Kuratsubo, Izumi;Suzuki, Yasuyuki;Kondo, Naomi
本研究的目的是评估儿童脑型x连锁肾上腺脑白质营养不良（CCALD）患者父母的心理健康状况，并探讨与心理问题相关的因素，以改善临床管理和生活质量。16名CCALD患者的父亲和21名母亲完成了一系列心理检查，包括贝克抑郁量表第二版（BDI-II）、一般健康问卷60 （GHQ60）和状态-特质焦虑量表（STAI）。3名父亲和1名母亲的BDI-II得分较高，表明他们处于抑郁状态。与之前的报道相比，这些母亲的抑郁症更为严重。根据GHQ60的结果，6名父亲和1名母亲被认为处于神经症状态。4名父亲和8名母亲的焦虑水平较高，母亲的健康和社会地位与其心理健康相关，年轻母亲的年轻患者往往更容易抑郁。因此，CCALD患者的父母有很高的抑郁和神经症风险。了解这些家长的心理状态，完善社会支持系统，包括心理咨询、家庭护理、工作场所和社区支持，对预防和治疗心理问题是必要的。特别是，应该为儿童诊断后几年的年轻母亲提供心理健康问题的早期干预。(C) 2008年Elsevier B.V.出版
The purpose of this study was to assess mental health in parents of patients with the childhood cerebral form of X-linked adrenoleukodystrophy (CCALD) and to investigate factors relating to psychological problems in order to improve clinical management and quality of life. Sixteen fathers and 21 mothers of patients with CCALD completed a battery of psychological examinations including the Beck Depression Inventory second edition (BDI-II), the General Health Questionnaire 60 (GHQ60), and the State-Trait Anxiety Inventory (STAI). Three fathers and I I mothers showed high scores on the BDI-II, suggesting that they were in a depressive state. Depression in the mothers was serious as compared with previous reports. Six fathers and I I mothers were considered to be in a state of neurosis, according to the results of the GHQ60. Four fathers and 8 mothers showed high levels of anxiety on the STAI Health and social status of the mothers correlated with their mental health, and younger mothers with young patients tended to be more depressed. Thus, parents of patients with CCALD have a high risk of depression and neurosis. Understanding the mental state of these parents and improvements in the social support system including mental counseling, home nursing care, supports in workplace and community are necessary to prevent and treat psychological problems. Especially, early intervention for mental health problems should be provided for younger mothers with few years since the child's diagnosis. (C) 2008 Published by Elsevier B.V.