Does pediatric home care make a difference for children with chronic illness? Findings from the Pediatric Ambulatory Care Treatment Study.
Does pediatric home care make a difference for children with chronic illness? Findings from the Pediatric Ambulatory Care Treatment Study.
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儿科家庭护理对患有慢性病的儿童有影响吗？
作者：
R. Stein;D. Jessop
患有慢性身体疾病的儿童所需的持续护理是全国关注的话题。儿科门诊护理治疗研究（PAPH）是一项经典的前测-后测随机实验，旨在评估儿科家庭护理（PHC）计划，其中跨学科团队为慢性病儿童及其家人提供全面的初级卫生保健，支持，协调，患者宣传和教育。家庭访谈由一个独立的研究小组进行，有219个家庭在入学，6个月和1年; 80%完成了所有三次访谈。分析表明，儿科家庭护理是有效的，在提高家庭的满意度与照顾，在改善儿童的心理适应，并在减轻母亲的精神症状。两组儿童的功能状态同样保持良好，两组之间疾病对家庭的影响没有显著差异。有迹象表明，在儿童的心理调整方面可能存在剂量相关效应，参与该方案时间最长的儿童受益最大。这样的家庭护理计划可以是一种有效的干预措施，以尽量减少慢性病的社会和心理后果。
The ongoing care needed by children with chronic physical illness is a topic of national concern. The Pediatric Ambulatory Care Treatment Study ( PACTS ) is a classic pretest-posttest randomized experiment designed to evaluate a Pediatric Home Care (PHC) program in which an interdisciplinary team provides comprehensive primary health care, support, coordination, patient advocacy, and education to chronically ill children and their families. Home interviews were conducted by an independent research team with the 219 families at enrollment, 6 months, and 1 year; 80% completed all three interviews. Analyses indicate that pediatric home care is effective in improving the satisfaction of the family with care, in improving the child's psychological adjustment, and in lessening the psychiatric symptoms of the mother. The functional status of the children was equally well maintained in both groups, and there was no significant difference in the impact of the illness on the family between the two groups. There are indications that there may be a dose-related effect with respect to the child's psychological adjustment with those in the program for the longest period of time showing the greatest benefit. Such a home care program can be an effective intervention for minimizing the social and psychological consequences of chronic illness.