A Web-Based Platform for Educating Researchers About Bioethics and Biobanking.
A Web-Based Platform for Educating Researchers About Bioethics and Biobanking.
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DOI：
10.1007/s13187-015-0812-5
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发表时间：
2016-06
期刊：
影响因子：
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通讯作者：
Quinn GP
中科院分区：
文献类型：
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作者：
Sehovic I;Gwede CK;Meade CD;Sodeke S;Pentz R;Quinn GP
在具有遗传性癌症（IFR）家族风险的个体和服务不足/少数群体中参与生物库对于生物库研究至关重要。为了解决这些人群的伦理问题的研究人员的知识差距，我们开发了一个基于网络的课程。在形成性研究和专家小组评估的基础上，以综合、系统的方式开发了课程和网站。招募了研究人员来评估课程。招募了公共卫生研究生对课程进行试点测试。所有14名研究人员都认为，该课程易于理解，充分解决了领域，并包含适当的测试后的问题。大多数人认为对话动画很有趣和有价值。22名研究生完成了课程，77%的人提高了他们的整体考试成绩。基于网络的课程是一种可以接受的有效方式，可以向研究人员提供有关弱势群体生物库问题的信息。未来的目标是将课程纳入更大的组织。
Participation in biobanking among individuals with familial risk for hereditary cancer (IFRs) and underserved/minority populations is vital for biobanking research. To address gaps in researcher knowledge regarding ethical concerns of these populations, we developed a web-based curriculum. Based on formative research and expert panel assessments, a curriculum and website was developed in an integrative, systematic manner. Researchers were recruited to evaluate the curriculum. Public health graduate students were recruited to pilot test the curriculum. All 14 researchers agreed that the curriculum was easy to understand, adequately addressed the domains, and contained appropriate post-test questions. A majority felt the dialogue animations were interesting and valuable. 22 graduate students completed the curriculum and 77% improved their overall test score. A web-based curriculum is an acceptable and effective way to provide information to researchers about vulnerable populations’ biobanking concerns. Future goals are to incorporate the curriculum with larger organizations.