Development and usability testing of a web-based cancer symptom and quality-of-life support intervention.
Development and usability testing of a web-based cancer symptom and quality-of-life support intervention.
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DOI：
10.1177/1460458213495744
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发表时间：
2015-03
影响因子：
3
通讯作者：
Berry DL
中科院分区：
文献类型：
--
作者：
Wolpin SE;Halpenny B;Whitman G;McReynolds J;Stewart M;Lober WB;Berry DL
计算机筛查和患者报告的结果测量的可行性和可接受性已在文献中得到证明。然而，以患者为中心的健康信息管理面临两个挑战：使用“患者定制”方法收集和呈现数据以及支持健康信息的“患者控制”。许多症状和生活质量信息系统的设计和开发并未包括系统收集和分析用户输入的机会。作为更大规模的临床试验（癌症电子自我报告评估 - II 项目）的一部分，参与式设计方法被用来为患者/护理人员用户构建和测试新功能和界面。研究问题集中在患者/护理人员对以下方面的偏好：（a）内容，（b）用户界面需求，（c）以患者为导向的总结，以及（d）患者控制的与家人、护理人员和临床医生共享信息。使用混合方法，重点是定性方法；焦点小组和个人可用性测试是主要的研究方法。焦点小组数据进行内容分析，而个人可用性会议则通过定性和定量方法进行评估。我们通过 6 名参与者的焦点小组确定了 12 个关键的患者/护理人员偏好。我们在迭代设计过程中实施了其中七个首选项。由于资源限制，我们推迟了某些首选项的开发。在单独的可用性测试 (n = 8) 中，我们发现了 65 个可用性问题，从轻微的用户困惑到阻碍任务完成的严重错误。我们使用的参与式开发模型导致了以患者为中心的功能和设计修订。我们目前正在评估应用程序接口和未来研究路径的新方法。我们鼓励其他研究人员在构建以患者为中心的技术时采用以用户为中心的设计方法。
The feasibility and acceptability of computerized screening and patient-reported outcome measures have been demonstrated in the literature. However, patient-centered management of health information entails two challenges: gathering and presenting data using “patient-tailored” methods and supporting “patient-control” of health information. The design and development of many symptom and quality-of-life information systems have not included opportunities for systematically collecting and analyzing user input. As part of a larger clinical trial, the Electronic Self-Report Assessment for Cancer–II project, participatory design approaches were used to build and test new features and interfaces for patient/caregiver users. The research questions centered on patient/caregiver preferences with regard to the following: (a) content, (b) user interface needs, (c) patient-oriented summary, and (d) patient-controlled sharing of information with family, caregivers, and clinicians. Mixed methods were used with an emphasis on qualitative approaches; focus groups and individual usability tests were the primary research methods. Focus group data were content analyzed, while individual usability sessions were assessed with both qualitative and quantitative methods. We identified 12 key patient/caregiver preferences through focus groups with 6 participants. We implemented seven of these preferences during the iterative design process. We deferred development for some of the preferences due to resource constraints. During individual usability testing (n = 8), we were able to identify 65 usability issues ranging from minor user confusion to critical errors that blocked task completion. The participatory development model that we used led to features and design revisions that were patient centered. We are currently evaluating new approaches for the application interface and for future research pathways. We encourage other researchers to adopt user-centered design approaches when building patient-centered technologies.