An assessment of epilepsy patients' knowledge of their disorder
An assessment of epilepsy patients' knowledge of their disorder
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DOI：
10.1111/j.1528-1157.2000.tb00235.x
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发表时间：
2000-06-01
期刊：
影响因子：
5.6
通讯作者：
Pickering, CT
中科院分区：
文献类型：
--
作者：
Long, L;Reeves, AL;Pickering, CT
目的：病人教育是综合护理的有效组成部分。评估患者对癫痫的了解的研究很少。我们报道了首个客观评估美国三级护理中心癫痫患者知识的研究。方法：220名转诊至癫痫中心的癫痫患者完成知识问卷调查。调查问卷包括与驾驶和就业的安全、合规和法律问题有关的主题。问卷得分与人口统计学、癫痫发作年限和教育背景相关。结果：220例患者中，175例进入研究分析。排除13%(n=28)为非癫痫发作，排除8%(n=17)为癫痫以外的诊断。癫痫患者的平均年龄为34.7±13岁，平均发病年限为14.4±13.1岁。年龄(r=0.20，p<0.01)、癫痫年限(r=0.09，p=0.2)、受教育年限(r=0.34，p<0.01)与问卷得分无关。30%的人认为癫痫是一种精神障碍或传染性。41%的人认为在癫痫发作期间将物体放入患者口腔中是合适的，以防止受伤。得分最低的两项分别为13.6%和47.5%，分别与驾驶和就业的法律问题有关。结论：癫痫患者对其疾病知识知晓率较低。这是正确的，无论年龄，教育背景，或患有癫痫的年数。有必要对这一人群进行教育干预，特别是与预防伤害以及驾驶和就业的合法性有关的教育干预。
Purpose: Patient education is an effective component of comprehensive care. Studies assessing patient's knowledge of their epilepsy are scarce. We report the first objective study evaluating knowledge of epilepsy patients referred to an American tertiary care center.Methods: Two hundred twenty epilepsy patients referred to an epilepsy center completed a knowledge questionnaire. The questionnaire included topics related to safety, compliance, and legal issues of driving and employment. Questionnaire scores were correlated with demographics, number of years with epilepsy, and educational background.Results: Of 220 patients, 175 were included in study analysis. Thirteen percent (n = 28) were excluded because of the diagnosis of nonepileptic seizures, and 8% (n = 17) were excluded because of having a diagnosis other than epilepsy. The average age and number of years with epilepsy was 34.7 +/- 13 and 14.4 +/- 13.1, respectively. Neither age (r = 0.20, p less than or equal to 0.01), number of years with epilepsy (r = 0.09, p = 0.2), nor years of education (r = 0.34, p less than or equal to 0.01) correlated with questionnaire scores. Thirty percent believed that epilepsy is a mental disorder or contagious. Forty-one percent believed it is appropriate to place an object in a patient's mouth during a seizure to prevent injury. Two of the lowest scores, 13.6% and 47.5%, pertained to the legal issues of driving and employment, respectively.Conclusions: Patients with epilepsy are not knowledgeable about their disorder. This is true regardless of age, educational background, or number of years with epilepsy. There is a need for educational intervention in this population, particularly related to injury prevention and the legalities of driving and employment.