Internet communities for recruitment of cancer patients into an Internet survey: a discussion paper.

Internet communities for recruitment of cancer patients into an Internet survey: a discussion paper.
复制标题

用于招募癌症患者参与互联网调查的互联网社区:讨论文件。

DOI:
10.1016/j.ijnurstu.2006.07.003
复制
发表时间:
2007
影响因子:
8.1
通讯作者:
Lim,HyunJu
Lim,HyunJu
中科院分区:
医学1区
文献类型:
--
作者:
Im,Eun-Ok;Chee,Wonshik;Tsai,Hsiu-Min;Bender,Melinda;Lim,HyunJu

文献摘要

相似文献

本文的目的是根据对132名癌症患者进行的互联网调查中提出的问题,为使用互联网社区(IC)招募研究参与者提供未来的方向。大约317个一般和233个种族特定的互联网癌症支持小组和1588个种族特定的IC被联系以招募癌症患者。研究人员在招聘过程中记录问题并撰写备忘录。书面备忘录和记录后来使用内容分析进行了分析。这些问题包括:(a)难以确定适当的IC和潜在的参与者,(B)元标签,(c)占主导地位的白色和妇女群体,(d)IC内部的动态,(e)难以建立信任,(f)潜在的选择偏见。研究结果表明,研究人员彻底审查的IC的信息,认识到潜在的性别和种族问题和互联网互动的当前趋势,并考虑潜在的选择偏见。
The purpose of this paper is to provide future directions for the usage of Internet communities (ICs) for recruitment of research participants based on issues raised in an Internet survey among 132 cancer patients. About 317 general and 233 ethnic-specific Internet Cancer Support Groups and 1588 ethnic-specific ICs were contacted to recruit cancer patients. Research staff recorded issues and wrote memos during the recruitment process. The written memos and records were later analyzed using content analysis. The issues included: (a) difficulty in identifying appropriate ICs and potential participants, (b) meta-tags, (c) dominant white and women groups, (d) dynamics inside ICs, (e) difficulty in trust building, and (f) potential selection bias. The findings suggest that researchers thoroughly review the ICs’ information, be recognizant of potential gender and ethnic issues and current trends in Internet interaction, and consider potential selection bias.