Stigma, activism, and well-being among people living with HIV
Stigma, activism, and well-being among people living with HIV
复制标题
DOI：
10.1080/09540121.2015.1124978
复制
发表时间：
2016-06-01
影响因子：
1.7
通讯作者：
Lang, Shawn M.
中科院分区：
文献类型：
--
作者：
Earnshaw, Valerie A.;Rosenthal, Lisa;Lang, Shawn M.
有证据表明，艾滋病毒污名会损害艾滋病毒感染者的心理和身体健康。然而，PLWH描述了参与艾滋病毒行动以挑战耻辱，研究表明个人可能会从行动中受益。我们研究了HIV污名化经历与HIV活动之间的联系，并测试HIV活动人士是否比非活动人士受益于更大的福祉。参与者包括在2012年至2013年期间从美国东北部的救助中心、住房项目和其他为PLWH提供服务的组织招募的93名PLWH(平均年龄=50岁，56%为黑人，20%为白人，18%为其他族裔，61%为非拉丁裔(a)， 39%为拉丁裔(a)；59%为男性，38%为女性，3%为变性人；82%是异性恋，15%是性少数)。参与者完成了一份横断面的书面调查。回归分析的结果表明，经历了更大的制定耻辱的PLWH参与了更大的艾滋病毒活动。然而，预期的、内化的和感知到的公众耻辱与艾滋病毒活动无关。此外，多变量方差分析的结果表明，与非积极分子相比，艾滋病积极分子报告了更大的社会网络整合，更大的社会福祉，更积极地应对歧视，以及更大的生活意义。然而，艾滋病积极分子也报告了比非积极分子更大的抑郁症状，这表明艾滋病积极分子和幸福感之间的联系是复杂的。通过区分HIV污名机制，目前的研究提供了更细致入微的理解哪些HIV污名经历可能与HIV活动有关。它进一步表明，参与行动主义可能会给PLWH带来好处，同时也增加了积极分子比非积极分子经历更大抑郁症状的可能性。鉴于本研究的初步性质，未来的研究应继续研究艾滋病污名、行动主义和艾滋病患者福祉之间的复杂联系。随着这项工作的继续，PLWH，以及为改善PLWH的福祉而投资的干预主义者和临床医生，应该仔细权衡行动主义的收益和潜在成本。
Evidence demonstrates that HIV stigma undermines the psychological and physical health of people living with HIV (PLWH). Yet, PLWH describe engaging in HIV activism to challenge stigma, and research suggests that individuals may benefit from activism. We examine associations between experiences of HIV stigma and HIV activism, and test whether HIV activists benefit from greater well-being than non-activists. Participants include 93 PLWH recruited from drop-in centers, housing programs, and other organizations providing services to PLWH in the Northeastern USA between 2012 and 2013 (mean age=50 years; 56% Black, 20% White, 18% Other; 61% non-Latino(a), 39% Latino(a); 59% male, 38% female, 3% transgender; 82% heterosexual, 15% sexual minority). Participants completed a cross-sectional written survey. Results of regression analyses suggest that PLWH who experienced greater enacted stigma engaged in greater HIV activism. Anticipated, internalized, and perceived public stigma, however, were unrelated to HIV activism. Moreover, results of a multivariate analysis of variance suggest that HIV activists reported greater social network integration, greater social well-being, greater engagement in active coping with discrimination, and greater meaning in life than non-activists. Yet, HIV activists also reported somewhat greater depressive symptoms than non-activists, suggesting that the association between HIV activism and well-being is complex. By differentiating between HIV stigma mechanisms, the current study provides a more nuanced understanding of which experiences of HIV stigma may be associated with HIV activism. It further suggests that engagement in activism may offer benefits to PLWH, while raising the possibility that activists could experience greater depressive symptoms than non-activists. Given the preliminary nature of this study, future research should continue to examine these complex associations between HIV stigma, activism, and well-being among PLWH. As this work continues, PLWH, as well as interventionists and clinicians invested in improving well-being among PLWH, should carefully weigh the benefits and potential costs of activism.