Involvement of relatives in the care of the dying in different care cultures: Involvement in the dark or in the light?
Involvement of relatives in the care of the dying in different care cultures: Involvement in the dark or in the light?
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DOI：
10.1097/00002820-199804000-00004
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发表时间：
1998-04-01
期刊：
影响因子：
2.6
通讯作者：
Ternestedt, BM
中科院分区：
文献类型：
--
作者：
Andershed, B;Ternestedt, BM
这项前瞻性研究的目的是增加现有的知识参与亲属在照顾临终关怀，并阐明亲属的一致性。在患者的最后一段时期的流行和死亡后，通过定性访谈跟踪六个亲属。患者在不同形式的护理中死亡：外科、疗养院、住院临终关怀病房和家中。这些亲属的共同点是，他们以不同的方式，从病人最初的症状开始，通过不同形式的护理，直到死亡。有些人非常积极地参与护理。亲属参与照料可以被描述为参与权利或参与黑暗。在光明中的参与是基于家庭和工作人员之间的信任关系：在黑暗中的参与是基于不充分的相互作用和合作，其中亲属没有被工作人员看到或承认，而是必须在黑暗中摸索，当他们试图支持病人时。快速病程可能是参与黑暗的风险因素。看来，亲戚的连贯性是一个重要因素，使他们能够参与光。人文关怀可以构成一种缓冲，从而增加亲属参与光的可能性。
The aim of this prospective study was to increase existing knowledge about the involvement of relatives in care of the dying and to shed light an the relatives' sense of coherence. Six relatives were followed via qualitative interviews during the patients' final period of rife and after their deaths. The patients died in different forms of care: surgical department, nursing home, inpatient hospice ward, and at home. What the relatives had in common was that they had, in different ways, followed the patient from the first symptoms, through different forms of care, up until death. Some participated very actively in the care. Relatives' involvement in care can be described as involvement in the right or involvement in the dark. Involvement in the light is based on a trusting relationship between the family and the staff: Involvement in the dark is based on insufficient interplay and collaboration, in which the relatives are not seen or acknowledged by the staff but instead must grope around in the dark when they try to support the patient. Rapid course of illness can be a risk factor for involvement in the dark. It seems that the relatives' sense of coherence was an important factor enabling then to be involved in the light. Humanistic care can constitute a buffer, thereby increasing the possibilities for relatives to be involved in the light.