Parent as proxy reporting - Implications and recommendations for quality of life research
Parent as proxy reporting - Implications and recommendations for quality of life research
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DOI：
10.1177/1074840706297789
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发表时间：
2007-02-01
影响因子：
3.1
通讯作者：
Pinelli, Janet
中科院分区：
文献类型：
--
作者：
Sherifali, Diana;Pinelli, Janet
儿童疾病管理的改善导致人们对儿童生活质量的兴趣增加，儿童生活质量研究可以采用替代或补充的观点。许多生活质量的文献都是以替代观点为指导的，这种观点认为父母最好报告他们孩子的生活质量。然而，互补视角同样重视父视角和子视角。这篇文章的目的是批判性地回顾与糖尿病儿童有关的生活质量文献。文献中的局限性被解决为概念和方法，人口统计学和潜在的代理观点。还讨论了生活质量测量和观点的益处和局限性。儿童生活质量研究的建议和未来的影响从替代和互补的角度扩展了目前的理解。
Improved disease management in children has resulted in an increased interest in the quality of life in children, Quality of life research in children may enlist either the substitute or complementary perspective. Much of the quality of life literature has been guided by the substitute perspective, which infers that parents may best report their child's quality of life. However, the complementary perspective values both parent and child perspectives equally. The purpose of this article was to critically review the quality of life literature with respect to children with diabetes. Limitations in the literature were addressed as conceptual and methodological, demographic, and underlying proxy perspectives. Benefits and limitations of quality of life measurements and perspectives were also discussed. Recommendations and future implications for quality of life research in children extend current understanding from both substitute and complementary perspectives.